Vivenia's Journey:

Patient: Endometrial (Uterine) Cancer > Carcinoma > Endometrioid Adenocarcinoma

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: about 4 years ago, Female, Age: 36, Stage I

  1. 1
    • Vivenia
    • Experience with Endometrioid Adenocarc...
    about 4 years ago
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    Bleeding

    Side Effects

    Near the end of my chemotherapy treatments for colon cancer I was ill and had a round of chemo delayed for a week. When my menstrual cycle began during that week, and was very heavy I thought my body was simply returning to normal after months of no bleeding. After more than a month of heavy bleeding with no signs of an end I made an appointment with a gynecologist. She examined me, prescribed some prednisone and scheduled an ultrasound to make sure everything looked ok.

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  2. 2
    • Vivenia
    • Experience with Endometrioid Adenocarc...
    about 4 years ago
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    Endometrial Biopsy

    Procedure or Surgery

    After the ultrasound they called to schedule an endometrial biopsy because my endometrium is "very thick". At the appointment for the biopsy the doctor told me that the thickest normal endometrium in my age range is 13mm and my endometrium measured 20mm. At this point I still wasn't concerned for another cancer diagnosis.

    Went as Expected: Neutral/NA
    Minimal Recovery: Not Specified
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    • Vivenia
    • Experience with Endometrioid Adenocarc...
    about 4 years ago
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    A New Cancer Diagnosis

    Oh No

    I got the call on a Thursday afternoon, minutes before an appointment with my oncologist. My third week after the end of chemo for colon cancer. I felt shocked and angry, instead of focusing on healing from chemo and moving on from this chapter in my life I'm starting over again back at the beginning. I have an appointment with a gynecologic oncologist this coming week to discuss treatment. I haven't told my family yet, I am waiting for test results for lynch syndrome - and I want to have a clear plan for treatment first.

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  4. 4
    • Vivenia
    • Experience with Endometrioid Adenocarc...
    almost 4 years ago
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    Should I do the fertility saving treatment, or the hysterectomy?

    Decision Point

    When I was first diagnosed the OB that I spoke with spoke only about having a hysterectomy. My oncologist said I'd probaply have to have surgery immediately. I was devastated, getting pregnant was something I need medical intervention for, and we've never had the money to do that - but I had always had hope for the future. When I went to the appointment with the Gynecologic Oncologist she said that the CT scan showed everything as normal, all my organs, all my lymph nodes, the major veins. My pap smear came back normal. She asked if I'd like to opt for fertility saving treatment. I told her that I'd prefer to go that rout, and asked her what our chances of successful treatment were if I chose that route. She said that she sees no reason why we can't be conservative in our treatment. So I'm on heavy duty doses of progesterone (and I crave sweets like crazy). In 6 weeks after the start of the major progesterone I'll have an ultra sound and a D&C. If everything looks good I'll go on a maintenance dose of progesterone and get an endometrial biopsy every 6 months. She said that even if I haven't managed to become pregnant by 35 she'd recommend a hysterectomy then. She'll also recommend the hysterectomy if any test results show cancer again.

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  5. 5
    • Vivenia
    • Experience with Endometrioid Adenocarc...
    almost 4 years ago
    Vivenia's Avatar

    Abdominal and Transvaginal Ultrasound

    Procedure or Surgery

    I had an ultrasound 6-24-2013 to check how things are going with the Megestrol. I spoke with someone at my Gynecological Oncologists office, she said that my ovaries still look normal, my endometrial complex is still a bit thick and I probaply have a fibroid. I just started bleeding again, so I'm kind of nervous about that - I'll email my doctor to see what she says. I've got an appointment at the beginning of August and then we will probably schedule a D&C. I'm nervous about getting the procedure approved with my insurance. Starting next month the state run pre-exsisting insurance I've been on will be federally run - and all procedures must be pre approved. I'll also have to start over on deductibles, and we'll have to pay more percentage wise for each bill. I'm sure it will all work out, but my level of medical debt is so great - I feel like I'm drowning sometimes.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
  6. 6
    • Vivenia
    • Experience with Endometrioid Adenocarc...
    over 3 years ago
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    Weight gain

    Side Effects

    Since I started taking the Megestrol I have gained 30 lbs (yes, that's right 10 lbs per month). I have gained so much weight that none of my clothes fit anymore except a pair of sweats I use as pajamas. When I went to the thrift store to buy clothes that fit I was horrified to find that I had ballooned up from a size 14 to a size 18. The doctor suggested an Atkins type diet to control the weight gain - I've been moderately successful at cutting sugar and starches out of my diet. Evidently Megestrol increases the appetite and causes the body to retain water. I think it's messing with my emotions too. We've put off the D&C because even with insureance it will cost $1500, and we just don't have any way of paying for it.

    1 Comment
  7. 7
    • Vivenia
    • Experience with Endometrioid Adenocarc...
    almost 3 years ago
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    Endometrial Biopsy

    Procedure or Surgery

    6.5.2014 - I wasn't expecting a biopsy when I went in for my appointment today, but depending on the outcome I may be able to skip having the D&C. I hate endometrial biopsies, they hurt, but I like that there's no anesthetic, so I can drive myself around after. I went into the appointment figuring that we'd be scheduling a D&C (that didn't happen last fall for financial and insurance reasons). I ran out of my megestrol in January, and several other life issues kept me busy enough that I didn't end up calling my doctor right away for a renewal on the perscription, but after the initial heavy bleeding my menstration was normal. My doctor said that she'll have an ultrasound done, but based on what she can see instead of megestrol every day it will be for days 1-14 of the month, and then stop so I can have a normal cycle. We'll start looking into ivf, cause if I want to have kids I should get on it soon. I know my insurance will cover part of that, but I'm nervous about finances. Hopefully the test comes back ok, and life can go on as normal.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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