AngieL's Journey:

Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: almost 4 years ago, Female, Age: 52, Stage I, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • AngieL
    • Experience with Invasive (Infiltrating)...
    over 3 years ago
    AngieL's Avatar

    Nipple Discharge

    Oh No

    For over a year before I had it checked. Mammography showed a mass behind and just to the right of the nipple.

    2 Comments
  2. 2
    • AngieL
    • Experience with Invasive (Infiltrating)...
    over 3 years ago
    AngieL's Avatar

    Core Biopsy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • AngieL
    • Experience with Invasive (Infiltrating)...
    over 3 years ago
    AngieL's Avatar

    mastectomy or lumpectomy

    Decision Point

    MRI confirmed Infiltrating Ductal Carcinoma (IDC) and showed a duct that is suspicious for Ductal Carcinoma In Situ (DCIS). Doctors recommend mastectomy, but also offer lumpectomy for the tumor & removal of suspicious duct and entire nipple. I don't want to lose any more of my breast than I absolutely have to, so I asked why remove the duct & nipple unless they're "sure" it is positive? Surgeon agreed to remove a portion of the duct during the lumpectomy to check it for cancer cells before removing it or the nipple. He acknowledged that even if the duct is positive, removal of the entire nipple still isn't the only option. So, if the duct tests positive he will just remove the affected duct and the portion of the nipple that it exits (like taking a slice of a pie) rather than the entire nipple, and connect the remainder leaving a smaller, but still round nipple. So I scheduled a lumpectomy for 4 June, but I'm still checking on mastectomy and reconstruction options. If I choose lumpectomy, I'll need several weeks of daily radiation treatments. If I choose mastectomy radiation won't be necessary. Either way I will be on tamoxifen for 5 to 10 years.

    0 Comments
  4. 4
    • AngieL
    • Experience with Invasive (Infiltrating)...
    over 3 years ago
    AngieL's Avatar

    Lumpectomy

    Procedure or Surgery

    Had my lumpectomy & sentinel node biopsy yesterday. 3 nodes removed. Won't find out results for two weeks. A portion of the suspicious duct was also taken and examined during the surgery for cancer cells. It was negative, so I didn't lose any of the nipple... So far, I've had minimal pain, and I'm taking pain meds as instructed to make sure it stays that way. Can't lift anything heavier than a gallon of milk for at least two weeks. The breast is swollen and bruised, so I can't tell yet if the shape will be changed, but the incision is razor thin and just around the edges of the areola, so I'm really happy with my surgeon so far. Now I wait for news on margins and node status. Got my fingers crossed!

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  5. 5
    • AngieL
    • Experience with Invasive (Infiltrating)...
    over 3 years ago
    AngieL's Avatar

    Requested a perscription for Chantix

    Other Care

    Plastic surgeon said I would be a good candidate for DIEP reconstruction if I quit smoking, so I sent a request to my GP for a prescription. Wish I'd done this earlier, but better late than never.

    1 Comment
  6. 6
    • AngieL
    • Experience with Invasive (Infiltrating)...
    over 3 years ago
    AngieL's Avatar

    Misdiagnosed

    Oh No

    Duct biopsy was ruled clear during surgery but found to be cancerous later in pathology lab, so back to surgery next week. Close margins on lumpectomy, so they'll also revisit and take a little more tissue out of that area at the same time. On the plus side though, nodes were clear!

    0 Comments
  7. 7
    • AngieL
    • Experience with Invasive (Infiltrating)...
    over 3 years ago
    AngieL's Avatar

    Surgery

    Procedure or Surgery

    26 Jun 2013 Had re-excision of original lumpectomy site to get better margins AND removal of the duct that was found to be positive for DCIS. That meant removal of the duct and a portion of the nipple. Since the wound from the first surgery healed so well (there was no scar near the areola at all!) I felt pretty good about the chances of having a normal looking nipple afterward.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  8. 8
    • AngieL
    • Experience with Invasive (Infiltrating)...
    over 3 years ago
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    Cellulitis

    Oh No

    29 June 2013 Two days after re-excision & duct removal the area around the wound appeared to have a slight blush; not red, just a little flushed looking. Then today I started having leakage (clear w/a little blood), and went in to the ER to have it checked. They diagnosed cellulitis and gave me oral antibiotics and an appt w/my surgeon for Monday. Hope the meds help. The on-call surgeon says if not, they'll admit me for IV antibiotics until the infection clears.

    0 Comments
  9. 9
    • AngieL
    • Experience with Invasive (Infiltrating)...
    over 3 years ago
    AngieL's Avatar

    Oh No

    Apparently the lumpectomy site wasn't infected as was thought. By the next Monday the skin had died and fallen away and I had a hole in my breast about the size of a quarter. I could see directly into the lumpectomy cavity. Surgeon assures me it will grow back and not leave a sink hole; not sure I believe him.

    0 Comments
  10. 10
    • AngieL
    • Experience with Invasive (Infiltrating)...
    over 3 years ago
    AngieL's Avatar

    Radiation

    Starting radiation in a couple of hours.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments