MzKindra's Journey with Invasive (Infiltrating) Ductal Carcin...

Survivor: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: almost 4 years ago, Female, Age: 39, Stage I, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • MzKindra
    • Experience with Invasive (Infiltratin...
    about 4 years ago
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    Problem with doctor

    Oh No

    Had to change initial surgeon because I just wasn't comfortable with the amount of information I received. I spent 10min with her and then a month alone with a binder she gave me. My new doctor rocks! I've met her entire team, they've called me several times, and I'm scheduled for surgery.

    1 Comment
  2. 2
    • MzKindra
    • Experience with Invasive (Infiltratin...
    about 4 years ago
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    Other

    Oh No

    Just learning I had cancer and sitting with that knowledge for a month with little contact from my medical team really had me sad and on edge.

    0 Comments
  3. 3
    • MzKindra
    • Experience with Invasive (Infiltratin...
    about 3 years ago
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    Lumpectomy

    Procedure or Surgery

    My surgeon did a wonderful job making my breast look good, but shortly after surgery I started experiencing a horrible pain in my breast. It lasted for months. I ended up having an infection that I was treated with IV antibiotics for because that caused a blood clot. I am still in pain, have lymphadema and a hematoma in it. This has been a very long journey!

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 4
    • MzKindra
    • Experience with Invasive (Infiltratin...
    about 3 years ago
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    External radiation

    Radiation

    I am told that because I have larger breasts and required the highest radiation, I had a different reaction. All I know is, I NEVER WANT TO EXPERIENCE RADIATION AGAIN! Initially, I thought it was going to be painless, but a few weeks in, the discomfort started. Once my skin changes started, it was XXX. I was totally unprepared. Thankfully the raw and peeling skin and leaking healed quickly. The videos and nurses did not prepare me for that experience.

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. 5
    • MzKindra
    • Experience with Invasive (Infiltratin...
    about 3 years ago
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    Fatigue (tiredness)

    Side Effects

    I am constantly tired after minimal activities. Taking a shower, washing tishes, even getting dressed. I'm taking vitamins and making sure I drink adequate water to stay hydrated, but my body is just exhausted all the time! When I need to drive somewhere, I am so tired by yhe time I get home, most of the time I will just come straight in my room and sleep for hours. It takes me a day or two to recover from one day of activity. This is for the birds!

    0 Comments
  6. 6
    • MzKindra
    • Experience with Invasive (Infiltratin...
    about 3 years ago
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    Sentinel lymph node biopsy

    Procedure or Surgery

    The surgery went as planned and thankfully the lymph node was clear. I only had one removed, but I have lymphedema now. May have been caused by radiation or lymph node removal. Not sure...

    Went as Expected: Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments
  7. 7
    • MzKindra
    • Experience with Invasive (Infiltratin...
    about 3 years ago
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    CAM (Complementary and Alternative Medicine)

    Other Care

    Started PT for lymphedema. It appears to be releasing some of the tension caused by the fluid build up. I've been in pain for so long, I'm very thankful for and help.

    0 Comments
  8. 8
    • MzKindra
    • Experience with Invasive (Infiltratin...
    about 3 years ago
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    Psychosocial

    Other Care

    Since finding out I had breast cancer, I have dealt with it alone. I was not referred to any by my medical team and I basically would go to my surgeon appointments and radiation and then go home. I felt very isolated. Most psychologist didn't accept my insurance. Recently, my oncologist realized that I really need to see a professional and made a recommendation. I started seeing a psychologist last week and it was such a relief being able to talk.

    2 Comments
  9. 9
    • MzKindra
    • Experience with Invasive (Infiltratin...
    about 3 years ago
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    Tamoxifen or no Tamoxifen?

    Decision Point

    My breast cancer journey has been the most traumatic and isolating experience of my life, as I'm sure is true for many survivors. I am not sure that I want to take Tamoxifen because it seems like it will extend that connection to something I want to disconnect from. The side effects seem to outweigh the benefits, and there are no stronger assurances that I won't get cancer anyway. Am I wrong? I'm only 36 and I've never had children. The thought of uterine cancer or hot flashes or lost sex drive for a 50% decrease in cancer risk seem foolish. What if I get the other 50%?

    5 Comments
  10. 10
    • MzKindra
    • Experience with Invasive (Infiltratin...
    almost 3 years ago
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    My Therapist Dropped Me Today :(

    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  11. 11
    • MzKindra
    • Experience with Invasive (Infiltratin...
    almost 3 years ago
    MzKindra's Avatar

    Targeted therapy

    Drug or Chemo Therapy

    Started Tamoxifen in May 2014 after much consideration, and a second opinion. So far experiencing headaches, hot flashes, and cotton mouth on a regular basis. These symptoms started about 3 days after starting meds. My oncologist says that if any symptoms become troublesome, we can consider stopping in 3 months.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments