mmnorris' Journey with Carcinoma Ex Pleomorphic Adenoma

Patient: Head & Neck/Throat Cancer > Salivary Gland Cancer > Malignant Mixed Tumor > Carcinoma Ex Pleomorphic Adenoma

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 4 years ago, Female, Age: 45

  1. 1
    • mmnorris
    • Experience with Carcinoma Ex Pleomorp...
    almost 4 years ago
    mmnorris' Avatar

    Surgery

    Procedure or Surgery

    Removal of tumor. Went in from behind my ear. Barely visible. Only long term side effect was ear nerve was cut.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. 2
    • mmnorris
    • Experience with Carcinoma Ex Pleomorp...
    almost 4 years ago
    mmnorris' Avatar

    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  3. 3
    • mmnorris
    • Experience with Carcinoma Ex Pleomorp...
    almost 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    • mmnorris
    • Experience with Carcinoma Ex Pleomorp...
    almost 4 years ago
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    External radiation

    Radiation

    Very hard. Major mouth sores. Burned skin. Swelling. Extreme fatigue

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. 5
    • mmnorris
    • Experience with Carcinoma Ex Pleomorp...
    almost 4 years ago
    mmnorris' Avatar

    Finished treatment

    Celebration

    Out to dinner with family and friends!

    0 Comments
  6. 6
    • mmnorris
    • Experience with Carcinoma Ex Pleomorp...
    almost 4 years ago
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    Mouth sores

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  7. 7
    • mmnorris
    • Experience with Carcinoma Ex Pleomorp...
    over 3 years ago
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    Myofascial release

    Symptom Management

    Trying myofascial release therapy for neck and facial tightness

    4 Comments
  8. 8
    • mmnorris
    • Experience with Carcinoma Ex Pleomorp...
    over 3 years ago
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    Small mouth opening

    Symptom Management

    Bought the orthostretch to try to widen small mouth opening

    0 Comments
  9. 9
    • mmnorris
    • Experience with Carcinoma Ex Pleomorp...
    almost 2 years ago
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    Cancer has spread/Metastasized

    Oh No

    Small tumor in lung. Had fine needle biopsy which confirmed cancer. Meet with the surgeon next week

    0 Comments
  10. 10
    • mmnorris
    • Experience with Carcinoma Ex Pleomorp...
    over 1 year ago
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    Surgery

    Procedure or Surgery

    Lobectomy to remove right upper lobe

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  11. 11
    • mmnorris
    • Experience with Carcinoma Ex Pleomorp...
    over 1 year ago
    mmnorris' Avatar

    Surgery

    Procedure or Surgery

    Developed an infection after lobectomy , empyema. Had to have emergency surgery to clean out the infection. Stayed in the hospital for one week. Left the hospital with a PICC line, and I have to administer antibiotics three times a day at home.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  12. 12
    • mmnorris
    • Experience with Carcinoma Ex Pleomorp...
    over 1 year ago
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    Cancer has spread/Metastasized

    Oh No

    Official pathology for this tumor is Adenoid Cystic Carcinoma.

    1 Comment