dcjjones' Journey with Sarcoma - Adult Soft Tissue Cancer

Survivor: Sarcoma - Adult Soft Tissue Cancer

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: almost 24 years ago, Male, Age: 42

  1. 1
    • dcjjones
    • Experience with Sarcoma - Adult Soft ...
    almost 5 years ago
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    Diagnosed

    Oh No

    I was diagnosed in January of 1992 with a type of Sarcoma called Leiomyosarcoma. It was not listed in any of the categories on here. This is a smooth muscle cancer that was found on my cranium.

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  2. 2
    • dcjjones
    • Experience with Sarcoma - Adult Soft ...
    almost 5 years ago
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    Surgery

    Procedure or Surgery

    I had a Craniectomy in the Winter of 1992. They removed the Sarcoma and put a plastic plate in my head where the Tumor had destroyed the bone in my Skull

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • dcjjones
    • Experience with Sarcoma - Adult Soft ...
    almost 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I went through a very high dosage of Chemotherapy. I wish I knew what drugs they gave me but I do not as I was so young. All I know is that my dosage was a steady drip for 5 days a week and I had to stay in the hospital to do this. I was sick up to one week after getting out of Chemotherapy. So two weeks out of every month was spent either sick or in the Hospital for up to six months. The good news is the Chemo got rid of the spot that was next to my esophagus.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • dcjjones
    • Experience with Sarcoma - Adult Soft ...
    almost 5 years ago
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    External radiation

    Radiation

    I had radiation on my skull following my second surgery to my head. At this point I was cancer free. The doctors recommended a radiation regiment once a week for six weeks. The idea was that if there were any residual cancer cells the radiation would kill the cells. This seemed to have work as I am cancer free today. Major side effect was that the Radiation treatment destroyed the hair follicles on the side of my head that the radiation was done. I have shaved my head ever since as it would look to funny growing out my hair on one side of my head and not the other. I can't say definitively that the radiation destroyed any residual cancer cells but the loss of my hair was worth the peace of mind.

    Painless Experience: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Agree
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  5. 5
    • dcjjones
    • Experience with Sarcoma - Adult Soft ...
    almost 5 years ago
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    Anniversary

    Celebration

    January marks the 20th year since my cancer diagnosis

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