rickw11's Journey with Ependymoma

Survivor: Brain and Spinal Cord Tumors in Adults > Glioma > Ependymoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 4 years ago, Male, Age: 52

  1. 1
    • rickw11
    • Experience with Ependymoma
    over 4 years ago
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    External radiation

    Radiation

    I was worried about fatigue problems but working out everyday seemed to have lessened this side effect.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  2. 2
    • rickw11
    • Experience with Ependymoma
    over 4 years ago
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    Surgery

    Procedure or Surgery

    seven hours for the operation, but very little back pain and quick recovery.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  3. 3
    • rickw11
    • Experience with Ependymoma
    over 4 years ago
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    Whether or not to have surgery

    Decision Point

    I felt surgery was necessary due to the size of the tumor. I have slight tingling in my toes, but that was the extent of the side effects.

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  4. 4
    • rickw11
    • Experience with Ependymoma
    over 4 years ago
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    Finished treatment

    Celebration

    All the side effects didn't really amount to much, just problems with incontinence which effects my quality of life. I will deal with it in a professional mannner.

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  5. 5
    • rickw11
    • Experience with Ependymoma
    over 4 years ago
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    Misdiagnosed

    Oh No

    Originally, I was diagnosed as a chordoma. This was a more complicated tumor and was harder to treat sucessfully. My diagnosis was changed to that of an ependymoma with my family getting various opinions on the proper diagnosis.

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  6. 6
    • rickw11
    • Experience with Ependymoma
    almost 3 years ago
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    Loss

    This person has yet to add any details about this experience.

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