cyberteach46's Journey with Inflammatory Breast Cancer

Patient: Breast Cancer > Inflammatory Breast Cancer

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: about 16 years ago, Female, Age: 52, Stage IV, HER2 Positive: Yes, ER Positive: Don't Know, PR Positive: Don't Know

  1. 1
    over 3 years ago
    cyberteach46's Avatar

    Misdiagnosed

    Oh No

    Played around with a small town doctor that didn't recognize my lump or what kind of cancer it might be. He also had no idea where to send me for treatment so he told me to call the Mayo clinic in Arizona and wait until they could fit me in for an appointment. Waited 6 months and never heard a word from them. Finally decided to find my own doctor in Phoenix that might be able to help me. Through my school insurance I found a Surgeon in Phoenix that specialized in Breast care and breast cancer so I set up an appointment for myself. Within days after seeing her she scheduled a needle biopsy and determined I had Inflammatory Breast Cancer. If my original doctor had sent me for an immediate needle biopsy 6 moths sooner, I could have started treatment a lot sooner. At that time , IBC is immediately diagnosed as stage lllb.

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  2. 2
    over 3 years ago
    cyberteach46's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    over 3 years ago
    cyberteach46's Avatar

    Mastectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 4
    over 3 years ago
    cyberteach46's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. 5
    over 3 years ago
    cyberteach46's Avatar

    External radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  6. 6
    over 3 years ago
    cyberteach46's Avatar

    Hair loss (alopecia)

    Side Effects

    This person has yet to add any details about this experience.

    1 Comment