Ross' Journey with Small Cell Carcinoma, Prostate Cancer

Survivor: Prostate Cancer > Small Cell Carcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 7 years ago, Male, Age: 76, Stage III, Progressing despite hormone therapy: Yes

  1. 1
    • Ross
    • Experience with Small Cell Carcinoma, Pro...
    almost 5 years ago
    Ross' Avatar

    Diagnosed

    Oh No

    Fall 2009 - Family Dr. determines I need biopsy. Biopsy occurs in Nov. and diagnosis shows cancer in 7 of 12 locations. Urologist also wants bone scan & rectal coil exam to determine if spread. Next meeting with urologist, he reports the bone scan and the rectal-coil MRI show no cancer. There is some bulging of cancer from the capsule. He reports the cancer is from T2-2 to T-3 and the Gleason scores were generally 4+3=7. My wife and I agreed that I would proceed with a prostatectomy I was somewhat scared and found that I had many questions about what next.

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  2. 2
    • Ross
    • Experience with Small Cell Carcinoma, Pro...
    almost 5 years ago
    Ross' Avatar

    Radical retropubic prostatectomy

    Procedure or Surgery

    After receiving "Positive" biopsy on Dec. 14,2009, my urologist believed in standard surgery as it gave him a "better feel" Surgery was scheduled with earliest date available - Feb. 4, 2010. Surgery went well and I went home 2 days later. 2 days after that I had the external drains removed, but kept the catheter for 14 more days. I returned to the urologist office Feb. 22 and he said the news was "rather ominous" as my Gleason score was now up to 9 and the tumor removed was about 3 1/2 cm. It was determined that I would need radiation therapy and hormone therapy. Radiation would not be scheduled until I was fully continent and fully healed. I received my 1st Lupron shot at that office visit.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • Ross
    • Experience with Small Cell Carcinoma, Pro...
    almost 5 years ago
    Ross' Avatar

    External radiation (Proton beam)

    Radiation

    After my prostatectomy in Feb. 2010, my urologist determined that I would need radiation therapy. He did not want me to start radiation until I was fully continent and healed. So, I did not start radiation until late May, 2010 and continued until late July. I felt fortunate that I had almost no side effects except tiredness. Going for radiation Mon. - Fri. for some 8 weeks across town is tiring by itself. At the end of treatment, I asked my radiation Dr. what he could say about my status. As a result of my PSA being at .008 (negligible), he said that I had "no active cancer" To add to my overall treatment, I started hormone therapy in Feb. 2010 and have continued that for 2+ years.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • Ross
    • Experience with Small Cell Carcinoma, Pro...
    almost 5 years ago
    Ross' Avatar

    Fatigue (tiredness)

    Side Effects

    After completing radiation, it took some time to feel that I was gaining strength and feeling less tired. As I was playing tennis twice a week and began a regime of strength workouts, I felt that I was gaining some overall fitness. Because of the continuing hormone therapy, I still have sexual side effects and hot flashes.

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  5. 5
    • Ross
    • Experience with Small Cell Carcinoma, Pro...
    over 4 years ago
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    Hormone therapy

    Drug or Chemo Therapy

    Feb. 2010 My introduction to hormone therapy started just 3 weeks after my prostatectomy. I was given a shot of Lupron. This is administered every 4 months. I also need calcium and vitamin D to minimize loss of bone density. My urologist referred me to an oncologist which I started seeing in April 2010. He prescribed Casodex (hormone therapy) in addition to the Lupron shots. April 2012 I thought I might go off the hormone therapy, however my urologigist and my oncoligist feel that in high risk disease like mine, that the hormone therapy should continue for 3 - 5 years. My urologist also is prescribing Xgeva to help reduce bone loss. So - treatments continue.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  6. 6
    • Ross
    • Experience with Small Cell Carcinoma, Pro...
    about 4 years ago
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    Other Care

    This person has yet to add any details about this experience.

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  7. 7
    • Ross
    • Experience with Small Cell Carcinoma, Pro...
    about 3 years ago
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    Finished treatment

    Celebration

    After more than 3 1/2 years of Lupron, Casadex, Xgeva and Megestrol today my urologist said he would stop all of these. I will get tested every 3 months to see that PSA stays at minimual rate. So now I begin a new era in my cancer treatment. This feels good.

    3 Comments