Ross' Journey:

Survivor: Prostate Cancer > Small Cell Carcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 12 years ago, Male, Age: 82, Stage III, Progressing despite hormone therapy: Yes

  1. 1
    • Ross
    • Experience with Small Cell Carcinoma, Pro...
    over 10 years ago
    Ross' Avatar

    Just Diagnosed

    Oh No

    Fall 2009 - Family Dr. determines I need biopsy. Biopsy occurs in Nov. and diagnosis shows cancer in 7 of 12 locations. Urologist also wants bone scan & rectal coil exam to determine if spread. Next meeting with urologist, he reports the bone scan and the rectal-coil MRI show no cancer. There is some bulging of cancer from the capsule. He reports the cancer is from T2-2 to T-3 and the Gleason scores were generally 4+3=7. My wife and I agreed that I would proceed with a prostatectomy I was somewhat scared and found that I had many questions about what next.

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  2. 2
    • Ross
    • Experience with Small Cell Carcinoma, Pro...
    over 10 years ago
    Ross' Avatar

    Radical retropubic prostatectomy

    Procedure or Surgery

    After receiving "Positive" biopsy on Dec. 14,2009, my urologist believed in standard surgery as it gave him a "better feel" Surgery was scheduled with earliest date available - Feb. 4, 2010. Surgery went well and I went home 2 days later. 2 days after that I had the external drains removed, but kept the catheter for 14 more days. I returned to the urologist office Feb. 22 and he said the news was "rather ominous" as my Gleason score was now up to 9 and the tumor removed was about 3 1/2 cm. It was determined that I would need radiation therapy and hormone therapy. Radiation would not be scheduled until I was fully continent and fully healed. I received my 1st Lupron shot at that office visit.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • Ross
    • Experience with Small Cell Carcinoma, Pro...
    over 10 years ago
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    External radiation (Proton beam)

    Radiation

    After my prostatectomy in Feb. 2010, my urologist determined that I would need radiation therapy. He did not want me to start radiation until I was fully continent and healed. So, I did not start radiation until late May, 2010 and continued until late July. I felt fortunate that I had almost no side effects except tiredness. Going for radiation Mon. - Fri. for some 8 weeks across town is tiring by itself. At the end of treatment, I asked my radiation Dr. what he could say about my status. As a result of my PSA being at .008 (negligible), he said that I had "no active cancer" To add to my overall treatment, I started hormone therapy in Feb. 2010 and have continued that for 2+ years.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • Ross
    • Experience with Small Cell Carcinoma, Pro...
    over 10 years ago
    Ross' Avatar

    Fatigue (tiredness)

    Side Effects

    After completing radiation, it took some time to feel that I was gaining strength and feeling less tired. As I was playing tennis twice a week and began a regime of strength workouts, I felt that I was gaining some overall fitness. Because of the continuing hormone therapy, I still have sexual side effects and hot flashes.

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  5. 5
    • Ross
    • Experience with Small Cell Carcinoma, Pro...
    about 10 years ago
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    Hormone therapy

    Drug or Chemo Therapy

    Feb. 2010 My introduction to hormone therapy started just 3 weeks after my prostatectomy. I was given a shot of Lupron. This is administered every 4 months. I also need calcium and vitamin D to minimize loss of bone density. My urologist referred me to an oncologist which I started seeing in April 2010. He prescribed Casodex (hormone therapy) in addition to the Lupron shots. April 2012 I thought I might go off the hormone therapy, however my urologigist and my oncoligist feel that in high risk disease like mine, that the hormone therapy should continue for 3 - 5 years. My urologist also is prescribing Xgeva to help reduce bone loss. So - treatments continue.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  6. 6
    • Ross
    • Experience with Small Cell Carcinoma, Pro...
    over 8 years ago
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    Finished treatment

    Celebration

    After more than 3 1/2 years of Lupron, Casadex, Xgeva and Megestrol today my urologist said he would stop all of these. I will get tested every 3 months to see that PSA stays at minimual rate. So now I begin a new era in my cancer treatment. This feels good.

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  7. 7
    • Ross
    • Experience with Small Cell Carcinoma, Pro...
    almost 4 years ago
    Ross' Avatar

    06/18 Urologigist Follow Up

    Other Care

    PSA still undetectable at >.02. After 8 1/2 years away from prostatectomy, feeling good. I exercise every week, play singles tennis twice a week, do yard work and feel good at 78. Some worry with skin cancers as I have had 5 Mohs surgeries so far, seems under control now. Feeling blessed to be a survivor, Ross

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