maggiebarnett's Journey with Breast Cancer

Patient: Breast Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 5 years ago, Female, Age: 59, Stage I, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    over 3 years ago
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    Lumpectomy

    Procedure or Surgery

    All surgeries have an impact on your daily life.

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  2. 2
    over 3 years ago
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    Misdiagnosed

    Oh No

    All 3 of my biopsies came back negative but my radiologist and I felt strongly that this was cancer. My surgeon has done several surgeries on me over the years but he did listen to us and agreed to do the surgery, he was very surprised. But he was also a bit upset with himself for not taking any nodes.

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  3. 3
    over 3 years ago
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    The decision whether to have mastectomy or not

    Decision Point

    I struggled with this and my doctors felt I should not have one. Truly, now I regret the decision everyday. My breasts are so dense that it is nearly impossible to tell if anything is growing in there or not. I have 2 lumps that do not show up on mammogram and the one that was bad did not show up on MRI

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  4. 4
    over 3 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    My white count fell drastically from the get go. They planned on 6 sessions of taxotere and cytoxin but I could only tolerate 4 sessions. About the time of my first nadir, my thyroid crashed and I had a critical tsh of 21.5, after my second round, I started having pulmonary hypertension. Severe diarrhea but only vomited a few times. The brownies really helped with sleep, pain and nausea. White count continued to drop so chemo ended and the shots to boost my count started, painful hips but I already have bursitis in both of my hips. Others I heard did not have any side effects.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    over 3 years ago
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    Diarrhea

    Side Effects

    The diarrhea was pretty bad, but since I normally lean towards constipation it wasn't terrible. Around the second dose I was diagnosed with pulmonary hypertension, such an effort to breathe with very little exertion.

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  6. 6
    over 3 years ago
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    External radiation

    Radiation

    After two weeks it was beginning to feel like I was going to work every morning and that part got old very quickly. My radiation oncology team was outstanding. I had 34 treatments. I am very fair skinned so naturally I did get burned. They were great about teaching skin care, providing supplies and great pain meds.

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  7. 7
    over 3 years ago
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    Just having my world turned upside down

    Loss

    I didn't cry, not once through biopsies, misdiagnosis, surgery, chemo, side effects, radiation and burns. I was watching the TV series Parenthood and one of the situations on the show was the same breast cancer that I have and watching it on tv was like looking down from above on my own journey. This is when I lost it, completely fell apart, took a long long shower and cried my heart out.

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  8. 8
    over 3 years ago
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    Loss

    This person has yet to add any details about this experience.

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  9. 9
    over 3 years ago
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    Decision Point

    I am really tired. My oncology team seems only interested in chasing the cancer. A new oncologist is coming to our community, she is from Georgetown and I hope that she will bring a fresh perspective to our area. My previous doctor retired so now I feel a little bit abandoned as it will be a while before I meet my new doctor. My old doctor refused to run tumor markers, said that there are too many false positives and negatives. Reading lots lately from good Internet sites...no more Dr Google for me. I was an easy case of T1bN?M0. The nodes are questionable since no nodes were taken and now I have significant lymphedema. People with my diagnosis sometimes don't make it and yet late stage serious cancers like pancreatic are living for years...so I fret. Also recently diagnosed with SLE (lupus). This goes along with severe hypothyroidism, pulmonary hypertension, memory loss, (bad enough that I have to give up my nursing license) and now the lupus. My quality of life has spiraled down the last 18 months. I have made the decisions that if at any time I get a stage 3 or higher or any metastasis that I will not peruse treatment except for comfort. If the lupus hits the kidneys then I will not have dialysis. I am not giving up, just setting the rules of the game.

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  10. 10
    over 3 years ago
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    Cancer is back/Recurred

    Oh No

    Friday I saw my internal medicine doctor, my intact PTH is extremely high. He referred me back to oncology. I have cancer again. Writing it makes it a little more devastating. Doubt that it is the breast cancer. Parathyroid cancer is pretty rare, so that narrows it down to lung, renal or pancreatic. Oh my.

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