rdy2trvl's Journey with Primary Mediastinal B-Cell Lymphoma

Patient: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Diffuse Large B-Cell Lymphoma > Primary Mediastinal B-Cell Lymphoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 10 years ago, Female, Age: 71, Stage IV

  1. 1
    • rdy2trvl
    • Experience with Primary Mediastinal B...
    over 8 years ago
    rdy2trvl's Avatar

    Health insurance issue

    Oh No

    How am I going to pay for this.....found relief through the state. After 9 months denied as I did not have children at home! Applied for assistance with the hospital as I was and still am on a two year retuxin plan. Genentech called and is supplying my Retuxin at no cost. Still have rising doctor bills but blessed the largest expense is paid.

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  2. 2
    • rdy2trvl
    • Experience with Primary Mediastinal B...
    over 8 years ago
    rdy2trvl's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    It was very hard. Side affects for me were tough. Can't eat, massive headaches, nausea, sweats.....but if it weren't for my faith and my family I don't know how I would have made it through

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • rdy2trvl
    • Experience with Primary Mediastinal B...
    over 8 years ago
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    Anemia (low red blood cell counts)

    Side Effects

    Makes you so very lethargic. Everything is an effort to do.

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  4. 4
    • rdy2trvl
    • Experience with Primary Mediastinal B...
    over 8 years ago
    rdy2trvl's Avatar

    To do two years of Retuxin or not

    Decision Point

    My tumor was still very large in my chest and I was told without this the cancer would be back. I have now only 1 treatment left! Two and a half years is along time with the these drugs but the tumor is very minute as of last April so by September it should be gone. My last treatment is in August and I will celebrate then!

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