Lovie's Journey with Chondrosarcoma, Bone Cancer

Survivor: Bone Cancer > Chondrosarcoma

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: over 14 years ago, Female, Age: 60

  1. 1
    • Lovie
    • Experience with Chondrosarcoma, Bone Cancer
    over 5 years ago
    Lovie's Avatar

    Procedure or Surgery

    My chondrosarcoma tumor originated in my ethmoid sinus. The tumor had attached itself to my eyes, my cheek bones, my nose, my brain, and everything else in its way! My doctors performed a frontal craniotomy to remove the tumor. Essentially removing my face to get at the tumor. I truly felt no post-op pain. Recovery wasn't a piece of cake, but it really wasn't all that tough either.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  2. 2
    • Lovie
    • Experience with Chondrosarcoma, Bone Cancer
    over 5 years ago
    Lovie's Avatar

    Radiation

    I received radiation treatments everyday for 6 weeks. The actual treatments were painless, but the radiation burns to my cheeks and mouth were painful. I'm just about ten years out and the long term radiation side effects for me are damage to my retinas, chronic ear ringing, and very little sense of taste. I have had laser surgery to my retinas in the past three years to prevent vision loss, and I continue to be monitored by the docs.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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