waynej's Journey with Rare Cancers

Patient: Rare Cancers

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 6 years ago, Male, Age: 65

  1. 1
    • waynej
    • Experience with Rare Cancers
    over 5 years ago
    waynej's Avatar

    Cancer has spread/Metastasized

    Oh No

    In July 2011 presented in er with abdominal pain, after 5 days in hospital and mri and ct scan revealed mass on pancreas and told it was pancreatic cancer.upon further testing it was determined that it was a neuroendocrine tumor and that I had to undergo a whipple procedure which was performed 10/5/2011 and subsequent pathology showed that 4 out of 13 lymph nodes are cancerous,more testing has determined that there are 2 small lesions,less than 2 cm, in the liver that test positive,also chromagranin A value is 20 ng/dl where 15 or below is considered normal and 5h1aa test is negative.I will now be starting chemo on 1/10/2012 a combination of Afinitor and octreotide injection and will be rescanned in 2 months to see if there has been any changes in the size.

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  2. 2
    • waynej
    • Experience with Rare Cancers
    over 5 years ago
    waynej's Avatar

    Surgery

    Procedure or Surgery

    Had a whipple to remove mass(neuroendocrine tumor) on the head of the pancreas on 10/5/2011 and have had some issues with food and pain but I have been fortunate that is all the issues that I had with the recovery

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • waynej
    • Experience with Rare Cancers
    over 5 years ago
    waynej's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Started octreotide injections and Afinitor tablet today 1/11/12. having cramping and frequent bowel movements, not diariah but no straining involved.last for approx 5-6 hours than ok

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    • waynej
    • Experience with Rare Cancers
    over 5 years ago
    waynej's Avatar

    Diarrhea

    Side Effects

    This person has yet to add any details about this experience.

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