teddyfuzz's Journey with Invasive Lobular Carcinoma

Patient: Breast Cancer > Invasive Lobular Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 5 years ago, Female, Age: 51

  1. 1
    • teddyfuzz
    • Experience with Invasive Lobular Car...
    over 5 years ago
    teddyfuzz's Avatar

    Diagnosed

    Oh No

    I have been faithful about having an annual mammogram since 2007 but my cancer (Invasive Lobular Carcinoma, or ILC for short) never showed up on the mammograms. I found it myself. I was diagnosed on 11/14/2011.

    0 Comments
  2. 2
    • teddyfuzz
    • Experience with Invasive Lobular Car...
    over 5 years ago
    teddyfuzz's Avatar

    Lumpectomy

    Procedure or Surgery

    Had a lumpectomy and a sentinel lymph node biopsy at the same time. The nuclear medicine injections that are done on the day of the surgery prior to the sentinel lymph node biopsy were the worst part. The pain after surgery wasn't as bad as I expected - surgery on Thursday and felt good enough to go back to work on Tuesday.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  3. 3
    • teddyfuzz
    • Experience with Invasive Lobular Car...
    over 5 years ago
    teddyfuzz's Avatar

    Diagnosed

    Oh No

    Biopsy results came back without clear margins. I thought I had two malignancies but it turns out there were five. I am officially diagnosed with Invasive Lobular Carcinoma (ILC), stage I and told that the left breast needs to come off for sure. With this cancer, I have a higher than normal chance that it will eventually show up in the right breast. I don't want to keep worrying about when it's going to show so I'm going to have a double mastectomy with reconstruction. Goodbye boobies, hello newbies:). Surgery is scheduled for January 19th. I also had the Oncotype DX test which came with a recurrence score of 21 which means that I have a 13% chance of distant recurrence without chemotherapy. The oncologist says that my score falls within a "grey area" but thinks that chemo may reduce the 13% down to 9%.

    0 Comments
  4. 4
    • teddyfuzz
    • Experience with Invasive Lobular Car...
    over 5 years ago
    teddyfuzz's Avatar

    Other

    Celebration

    Had one last girl's night out before my surgery and chemo. We had a blast! It was the "Goodbye Boobies, Hello Newbies" party:)

    1 Comment
  5. 5
    • teddyfuzz
    • Experience with Invasive Lobular Car...
    over 5 years ago
    teddyfuzz's Avatar

    Double Mastectomy

    Procedure or Surgery

    Had a double mastectomy on Jan 19th. No cancer found in the right side - yay! I opted for reconstruction and just had my third expansion yesterday. I haven't had boobs this perky since 7th grade!

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  6. 6
    • teddyfuzz
    • Experience with Invasive Lobular Car...
    over 5 years ago
    teddyfuzz's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    2/21/12 I need a total of four chemo treatments, three weeks apart. Round 1 of 4 on 2/21/12. 137 mg Taxotere and 1100 mg Cytoxan.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    3 Comments
  7. 7
    • teddyfuzz
    • Experience with Invasive Lobular Car...
    about 5 years ago
    teddyfuzz's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    3/14/12 Chemo round 2. Had an allergic reaction to the Taxotere this time so they had to stop the drip and give me more steroids. That was kind of scary. All of a sudden I felt cramps in my stomach, my head got really hot, felt like I had an elephant on my chest and was seeing spots. It was over quickly and after the second dose of steroids I was able to finish my Taxotere and Cytoxin with no problems.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    2 Comments
  8. 8
    • teddyfuzz
    • Experience with Invasive Lobular Car...
    over 4 years ago
    teddyfuzz's Avatar

    Breast Reconstruction (Implant)

    Procedure or Surgery

    6/15/12 Bilateral breast reconstruction completed in June. Back to work full time since July 17th

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  9. 9
    • teddyfuzz
    • Experience with Invasive Lobular Car...
    over 4 years ago
    teddyfuzz's Avatar

    Humor...

    Celebration

    My favorite breast cancer saying on a shirt... Yes they're fake. My real ones tried to kill me. It makes me laugh because that's exactly how I felt about my boobs. Those be-otches tried to kill me! I showed them - LOL!

    1 Comment
  10. 10
    • teddyfuzz
    • Experience with Invasive Lobular Car...
    over 4 years ago
    teddyfuzz's Avatar

    CT scan

    Procedure or Surgery

    10/1/12 Had CT scan on chest and pelvis areas. After undressing down to my underwear and donning the ever-stylish hospital gown, I was asked to lay on the table of the CT machine. They put an IV in my arm and told me that when the dye was released I would first get a metallic taste in the back of my throat and then it would make me feel warm all over. They released the dye, I got the metallic taste in the back of my throat and then started to feel warm....and then OMG!! I THINK I JUST PEED MY PANTS!!! The CT tech must have heard me say "Oh no!" as I quickly put my hand down there in an attempt to stop it because the next thing she said was "Oh, sometimes it makes you feel like you are peeing your pants but you're not really peeing your pants". Thank God for small favors. After the dye was administered, the table I was on slid in and out of the CT machine - "Please hold your breath" and "Now you may breathe". They did this about 3-4 times and then I was done. The IV was removed from my arm, I got dressed and returned to work. Easy peasy.

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  11. 11
    • teddyfuzz
    • Experience with Invasive Lobular Car...
    over 4 years ago
    teddyfuzz's Avatar

    BONE SCAN

    Procedure or Surgery

    10/9/12 Went in for bone scan. It's a 2 appointment process. First appointment was at 10:45. They took me in the back and sat me in a chair. The tech brought in the syringe, which was sitting in the middle of what looked like a lead goblet. The amount of liquid that was injected into the vein in my arm was much smaller than I thought it was going to be. The isotope (or whatever it was) needs a few hours before it's absorbed so I was asked to come back at 1:45pm. I met a friend for lunch and then went back for the actual scan. The bone scan machine looks a little like an MRI. I didn't have to get undressed - just took my bracelet and necklaces off - and laid on the table. 4 of the scans took 3 minutes each. The full body scan took 24 minutes. Since I had already had lunch it was a nice time to catch a nap. I wish everything was this easy:)

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
  12. 12
    • teddyfuzz
    • Experience with Invasive Lobular Car...
    over 4 years ago
    teddyfuzz's Avatar

    Pre-surgical Consultation with the Plastic Surgeon

    Other Care

    10/18/12 Had my pre-surgical consultation with the plastic surgeon for the reconstruction revision. Surgery is scheduled for Wednesday, November 6th. Here’s what the doctor said is going to happen: 1. They are going to be taking the saline implants out and replacing them with shaped silicone implants. 2. On the left side they will move the implant more towards the middle of my chest and remove some of the scar tissue to “free it up” (that’s what the doc said). 3. On the right side, they are removing 2 - 3” of skin on the side to “tighten it up”. 4. Then they will insert the top of the right implant under the chest muscle to give it more fullness on top which will hopefully make it look more like the left side. My expectations are not high - I know that the new "girls" will never look like the old ones. But, I’d just like them to look a little better. Every time I look at them now I am reminded of the plastic surgeon I went to because I was in a hurry to move forward and I get angry. Angry at myself for not being patient and angry at him because he did his own thing on me. I don't think he had the experience that was needed in my case. Anyway, that's all water under the bridge now. The new plastic surgeon thinks that she can improve on how they currently look. So, I figure that I’ll give it one more shot. I hope I'm doing the right thing.

    0 Comments