lorilaa's Journey with Ductal carcinoma in situ (DCIS)

Patient: Breast Cancer > Ductal carcinoma in situ (DCIS)

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Female, Age: 48, Stage I, HER2 Positive: Don't Know, ER Positive: Don't Know, PR Positive: Don't Know

  1. 1
    • lorilaa
    • Experience with Ductal carcinoma in si...
    almost 6 years ago
    lorilaa's Avatar

    I was diagnosed in Oct 2012 and I had to make the decisions of what procedures to preform depending on what the doctors found out at the time of surgery.

    Decision Point

    The diagnoses of finding out I had cancer was devastating. I was told that I was lucky because it was caught early and if I was to get any cancer this was the one to get. I didn't and still don't think myself lucky, probably because I feel having any type of cancer no matter what stage is still overwhelming and devastating to anyone. I understand now what they meant but it didn't make the diagnoses any less traumatic for me. I was and still am in a state of shock and feel like its the end for me.

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  2. 2
    • lorilaa
    • Experience with Ductal carcinoma in si...
    almost 6 years ago
    lorilaa's Avatar

    Lumpectomy

    Procedure or Surgery

    I had a biopsy to discover if it was cancer. I feel that I knew the answer before the biopsy. After the biopsy I had to decide the choice of what was to happen during surgery depending from what the surgeons find when in surgery. This was hard because of the idea of not knowing and all the what if's. This would happen if it was like this or that would happen if its like that. The reality set in that at this time they really didn't know how bad it was and I could end up with a mastectomy. Which at this time I really didn't care I just didn't want the cancer inside me. I made the choices of if the cancer spread to do what was necessary including mastectomy.

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • lorilaa
    • Experience with Ductal carcinoma in si...
    almost 6 years ago
    lorilaa's Avatar

    External radiation

    Radiation

    At this time I'm suppose to be cancer free and doing the radiation to get any cancer cells that may have been missed. (To my understanding) I felt at this point I had to do this to prevent any reoccurring cancer. When really it can cause other cancers and even still reoccur after having radiation. My radiation was going good in the beginning but as I got to the last two weeks I started to feel the side effects. I was exhausted as I was leaving the radiation area after the procedure. By the last 5 days I had to have my fiancé take me to my appointment because I was burn out exhausted and was feeling side effects and I didn't know at the time probably severe depression, anxiety issues, and bad side effects from the cancer meds I was taking to lessen my chances of a reoccurrence. I couldn't even function normally. I was in a tough state of mind at this point. But I did get to ring that bell on the last day and the tears flowed with joy of being done.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    • lorilaa
    • Experience with Ductal carcinoma in si...
    almost 6 years ago
    lorilaa's Avatar

    Depression and Anxiety

    Other Care

    I had multiple side effects from the cancer meds I was on to prevent future cancers. So I went off the meds because I felt like I had the flu constantly (it was terrible). I had some pain from the surgery and pain from the radiation but I considered myself lucky. I now have everyday fear of the cancer returning. The fear that made me think every pain or cramp must be cancer.

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  5. 5
    • lorilaa
    • Experience with Ductal carcinoma in si...
    almost 6 years ago
    lorilaa's Avatar

    I had my 6 month recheck today July 5th 2013

    Celebration

    I had my 6 month recheck today July 5, 2013. I had a mammogram done and a exam done today, this is the first time since my surgery and radiation was completed. They told me the mammograms were good! I'm so happy I think I'm in shock though. I was so scared through all my experience that I only thought the worst case scenario. Today at my appointment I don't think I wanted to get my hopes too high because I was scared to think positive. I didn't want to jinx myself, pretty superstitious huh? I'm so happy that I'm cancer free as of today. But it hasn't set in yet. I still need support because it hit me so hard and it was a traumatic experience. I still have the fear of it returning but I'm going to start living again like I was before. I have hope and prayers and a lot of people like all of you on my side. Thank you all for being here.

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