Jimig's Journey with Colorectal (Colon) Cancer

Survivor: Colorectal (Colon) Cancer

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: about 9 years ago, Male, Age: 67, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know, Stage IIB

  1. 1
    • Jimig
    • Experience with Colorectal (Colon) Cancer
    almost 8 years ago
    Jimig's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I have had 12 infusions..with positive results, whereupon, plans of surgery to remove tumor were made.. My base line CEA numbers started at 144. After two treatments it had dropped to 77, which was encouraging. I went down continually, which my oncologist told me that was good. I was anemic tho,and my red blood cell counts were low due to chemo.. so I had to have two blood transfusions during this experience as well as medicine for low white blood cell counts..there were side effects, some that still linger..but throughout the whole deal I never vomited once!..never lost my hair..other than what I've already lost..lol..and I did what I was told to do..followed my meds exactly and ate well. Learning to live with an ostomy is another topic..but I've survived it all, and plan on keeping on...

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  2. 2
    • Jimig
    • Experience with Colorectal (Colon) Cancer
    almost 8 years ago
    Jimig's Avatar

    Had infection come out of blue, diagnosed with necrotising faciitis, flesh eating virus..emergency surgery and infection removed..determined only way to heal wound on butt cheek, where a chunk the size of my fist was removed..had vacuum wound therapy and

    Oh No

    This was a Shock..but I refused to believe I could not survive..I had survived what could have taken my life that night! I have a strong positive attitude..I was told i had an incurable disease, and that all they could do was extend my life..so it all started then...i endured about 8 months of vacuum therapy where they had removed a chunk of my butt cheek..having that type of wound was not easy at all...I had to wear the pump 24/7 and had a hose coming out of my left butt cheek ..felt like a goshdarned garden hose..at least that's what i'd say..lol...and my oncologist wanted to do aggressive treatment to control and try to shrink the cancer, but with an open wound, the chemo they wanted to try couldn't be used, can't recall name at the moment, but they did start me on chemo..after two infusions, my CEA numbers were half..or 77! it was working! CEA numbers showed I responded extremely well and went from a 144 to a 10 after twelve treatments...I then took a chemo break..to recover slowly and surely and planned surgery at a later date to remove the tumor..another journey I'll share when I have more time..

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  3. 3
    • Jimig
    • Experience with Colorectal (Colon) Cancer
    almost 8 years ago
    Jimig's Avatar

    Colon surgery (colectomy or hemicolectomy)

    Procedure or Surgery

    Tumor removed from colon, about a foot of the lower large colon as well as the rectum, 26 lymph nodes, 4 being cancerous , and had permanent end ostomy. Lost weight, and also ended up with a fistula that kept leaking. Now am mostly recovered, but am also doing a second round of chemo, with a different formulation..have had 2 infusions to date

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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