Braids' Journey:

Survivor: Endometrial (Uterine) Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 8 years ago, Female, Age: 70

  1. 1
    • Braids
    • Experience with Endometrial (Uterine) C...
    almost 8 years ago
    Braids' Avatar

    Surgery

    Procedure or Surgery

    Three days after having a mastectomy, I received the news that my uterine biopsy was positive for a second type of cancer. Had a hysterectomy two weeks later and found out it was a very aggressive rare type of cancer - leiomyosarcoma. Finished a second round of chemo and radiation for the breast cancer. Was ready to have the inplant surgery when on my three month check up with the gynecologist a small tumor was found in my vagina. Had it removed last week, tested positive - leiomyosarcoma again. Now will be having more radiation of that area.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
  2. 2
    • Braids
    • Experience with Endometrial (Uterine) C...
    almost 8 years ago
    Braids' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I've had twelve sessions of Taxol before my surgery to try and shrink the tumor. Unsuccessful. Four sessions of Adriamicin & Cytoxin after. I had minimal side effects from the Taxol. The Adriamicin & Cytoxin made me nauseous and had muscle aches from the Neulasta. Hair gone after second week. Managed to work through out the treatments While undergoing treatment for the breast cancer in 2012, I found that I had leiomyosarcoma in January 2013. It first spread to my lungs. In November 2013, I was diagnosed with a tumor in my vagina. Had surgery and chemotherapy with I first received Gemzar/Taxotere in 2013. It kept things stable. In April 2014, I switched to MDAnderson and my doctor there recommended Darcarbazine. Had six treatments but could not tolerate any more. Blood counts were not recovering. I also had radiation for a second tumor in my vagina that was not operable. Shrunk it with no lasting side effects. Took a break in December 2014 from chemo. Fortunately, the tumors continued to shrink and became stable. What a nice blessing! Nine months no treatment and feeling like a normal person. Then, in October 2015, the CT scan showed that I had also developed a tumor on my left chest wall, in my right buttocks and in my upper left thigh. Thank goodness it is not threatening any major organs yet. I am now taking Votrient (Pazopanib). This is a chemo pill that I take everyday. The CT scan I had in December is promising. Tumor growth is stable or shrinking. The nausea is bearable with medication. Bad taste in the mouth makes all food taste off. Hard to not eat less but hard to eat when it doesn't taste right. Have lost a little weight and can't afford to lose more so eat small amounts often. Just celebrated three year surviving and since 28 months with leiomyosarcoma is the average I feel lucky. Have finally decided enough is enough. Stopped working full time and went on disability. The decision was rather sudden so I am still adjusting to being home. Looking at options for seniors so I still can get out and be with people when I feel up to it.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Braids
    • Experience with Endometrial (Uterine) C...
    almost 8 years ago
    Braids' Avatar

    External radiation

    Radiation

    Radiation was for breast cancer. Was not as fatigued as I thought I would be. By 24 session was getting very burned under my arm despite use of creams. Now I will be undergoing radiation for secondary vaginal tumor. Not looking forward to the burning in that area!

    Painless Experience: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments