tak197's Journey with Follicular Carcinoma

Patient: Thyroid Cancer > Follicular Carcinoma

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 5 years ago, Male, Age: 31, Stage I

  1. 1
    • tak197
    • Experience with Follicular Carcinoma
    over 5 years ago
    tak197's Avatar

    Sort of Diagnosed?

    Oh No

    I figured I would do this now because I am having some issues dealing with it. I had a biopsy done on my left thyroid before New Years. Yesterday (1/9/12), I went to the doctor for my results, which were... interesting. She said that from the FNA, they could only tell that it was a tumor of some sort, but they didn't know if it was malignant or benign. So I have to go under the knife for a left thyroid lobectomy in February, so they can take the whole thing out to test the tissue. Now I knew that I would be getting surgery for it, because she told me at the biopsy that my gender and the size of the lump (3 cm, I believe) made her think removal was the best option.

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  2. 2
    • tak197
    • Experience with Follicular Carcinoma
    over 5 years ago
    tak197's Avatar

    Surgery

    Procedure or Surgery

    This was my first surgery ever, so I was quite nervous about it. I was going in for a left thyroid lobectomy. Date: February 13, 2012

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • tak197
    • Experience with Follicular Carcinoma
    over 5 years ago
    tak197's Avatar

    Diagnosed

    Oh No

    February 22, 2012 - Diagnosed with Follicular Carcinoma. I was surprisingly calm upon diagnosis, even a little giddy. I think it was getting an answer that made me feel good. Of course, knowing what I know now, this is going to be a battle. My dad showed the lab report to his coworker, who explains what the whole thing meant. I'm at stage one because the lumps themselves didn't leave the thyroid. However, there was evidence of vascular branching, so it was moving out to start invading the rest of my body. I lucked out.

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  4. 4
    • tak197
    • Experience with Follicular Carcinoma
    about 5 years ago
    tak197's Avatar

    Surgery

    Procedure or Surgery

    Scheduled for a Right thyroid completion lobectomy on April 16th, 2012. This surgery went pretty well, though I got home with a massive migraine and my neck being sore. I had a difficult time with finding a comfortable position for sleeping, but the next day, the headache was gone and I felt a ton better.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
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  5. 5
    • tak197
    • Experience with Follicular Carcinoma
    about 5 years ago
    tak197's Avatar

    New Cocktail

    Drug or Chemo Therapy

    After my surgery, I was given a new cocktail regimen for my overall health. My thyroid medicine is now a half a pill twice a day, and calcium and vitamin D three times a day. Before all of this happened, I just had one time a day that I needed to take my medicines, so it's taking some getting used to.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  6. 6
    • tak197
    • Experience with Follicular Carcinoma
    about 5 years ago
    tak197's Avatar

    Internal radiation

    Radiation

    PET Scan on the 30th, June 1st is the RAI dose. I have been doing well, though the only problem I had was going on a low-iodine diet for before the actual dose of Iodine. Then the three days of sequester have been pretty lonely, so I can't wait to see my family and my puppy again soon.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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  7. 7
    • tak197
    • Experience with Follicular Carcinoma
    almost 5 years ago
    tak197's Avatar

    Hormone therapy

    Drug or Chemo Therapy

    I was told that as of the second day of my radiation treatment, I was to start my hormone therapy which is a higher dose of levothyroxine. It was basically just adding to my routine of medications, which has now shifted again. My current cocktail is as follows: One Antidepressant (from prior to diagnosis) One Triglyceride controller (side effect of thyroid dysfunction) Two Fish Oil (Triglyceride control) Two Vitamin B-12 (to boost energy) One Thyroid Hormone (Hormone Therapy) Two Calcium + Vitamin D (Evening, to combat calcium deficiency from thyroid dysfunction)

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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