bewell's Journey with Cervical Cancer

Patient: Cervical Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 7 years ago, Female, Age: 51

  1. 1
    • bewell
    • Experience with Cervical Cancer
    almost 6 years ago
    bewell's Avatar

    Cancer is back/Recurred

    Oh No

    Went in for what I thought would be my last PET/CT the week of Thanksgiving 2011. I was feeling good, strong. All prior tests had been clear. Two nodes in my abdomen light up. I dreaded the thought of the cancer coming back from the very start of this journey, but I really didn't think it would come back so soon. I thought I would get a few disease free years. So, I processed the news and started back in chemo the beginning of December. Carbo/Taxol. Every third week for four treatments. Oh joy! Side effects are nothing like what I went through when I was diagnosed in 2010. I was so compromised by the surgery that I had an awful time with the side effects of the chemo and radiation. Found I was allergic to Neulasta? (Shot that boosts blood count), very bad for me. I am so glad I am not getting sick this time. They are giving me a three day dose of Emend. It works great! I am sick to my stomach most of the time but it is mild. I am finding the treatments leave me exhausted for a full week and then I start to rally. My hair started falling out a couple weeks after the first treatment, but I had a friend buzz cut it. I didn't want to wait for it to fall out leaving a trail of hair in my wake. That was empowering. Take control where at all possible! I am accumulating a great collection of hats, and one very poofy wig. I didn't loose my hair the first go round, so this is all new to me. It really isn't so bad.

    0 Comments
  2. 2
    • bewell
    • Experience with Cervical Cancer
    almost 6 years ago
    bewell's Avatar

    Radical hysterectomy

    Procedure or Surgery

    5/2010 - Not your run of the mill surg. Eight hours plus and apparently they had me spread out like a frog on the table. Removed my entire ladies department and 70 lymph nodes. Out of the 70, 16ish were effected. Because of my precarious position on the table for such a great length of time, I came out of it with femoral nerve damage to my left leg. Yup, woke up loaded to the gills with pain meds and my leg would not respond to my brain. "This happens often," or so I was told. I ended up having to be hospitalized for 32 days. Half the month at the hospital, while they figured out what to do with me, then the rest of the month at a rehabilitation hospital. I went from the bed, to the wheelchair, to the walker to the cane to today and I hit the hospital floor a couple of times. Note to everyone, when you fall in the hospital and your sitting on your bare fanny on the cold tile floor and you've got ten nurses staring down at you, don't say "I've fallen and I can't get up." No one will think its funny! After months of doing my own physical therapy and wearing a pretty serious brace, I was able to walk without a limp. I did sustain permanent damage to the leg, but as my nerve doctor said, "This is as good as it is going to get, and that is pretty good." Because of the nerve damage, I couldn't pee on my own and had to learn how to catheterize myself while I was in the rehabilitation hospital. There was no way I was going to be able to do that, but they told me I couldn't go home until I did. The nurses were very patient. I thought I would die, no really. I didn't see how I was going to do this. But I did, and I could. Seven months later the ability to pee on my own came back. That was a very good day. When you go through something like this, you realize how nice it is just to be able to pee! The simplest things become the greatest triumphs.

    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. 3
    • bewell
    • Experience with Cervical Cancer
    almost 6 years ago
    bewell's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 4
    • bewell
    • Experience with Cervical Cancer
    almost 6 years ago
    bewell's Avatar

    External radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. 5
    • bewell
    • Experience with Cervical Cancer
    almost 6 years ago
    bewell's Avatar

    Many of the above

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    • bewell
    • Experience with Cervical Cancer
    almost 6 years ago
    bewell's Avatar

    Loss

    This person has yet to add any details about this experience.

    0 Comments
  7. 7
    • bewell
    • Experience with Cervical Cancer
    over 5 years ago
    bewell's Avatar

    Remission

    Celebration

    This person has yet to add any details about this experience.

    0 Comments