papayagirl's Journey with Invasive Lobular Carcinoma

Patient: Breast Cancer > Invasive Lobular Carcinoma

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 5 years ago, Female, Age: 72

  1. 1
    • papayagirl
    • Experience with Invasive Lobular Ca...
    over 5 years ago
    papayagirl's Avatar

    Diagnosed

    Oh No

    Complete shock, even though my surgeon has said that it was growing for 5 years. My mammograms never caught it until I had a breast biopsy this time. My nights have been restless and my first thought has been "Oh my God, I have cancer!" when I wake up or "My brother is gone." Sadly, my youngest brother died from pancreatic cancer just 3 days after I was diagnosed and the day after his 60th birthday. That is what I am saddest of all about.

    0 Comments
  2. 2
    • papayagirl
    • Experience with Invasive Lobular Ca...
    over 5 years ago
    papayagirl's Avatar

    Decision Point

    Here I am faced with the decision...lumpectomy or mastectomy or double with reconstruction. Can you share your decision experience

    1 Comment
  3. 3
    • papayagirl
    • Experience with Invasive Lobular Ca...
    over 5 years ago
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    Procedure or Surgery

    Feeling OK just 30 hours after surgery but am sad the cancer has spread to the lymph nodes. That will mean chemo and likely radiation and hormone therapy. It will be a long journey. Papayagirl

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    4 Comments
  4. 4
    • papayagirl
    • Experience with Invasive Lobular Ca...
    over 5 years ago
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    Breakthrough

    Celebration

    No radiation, just chemo, cancer only in one sentinel node...I am so fortunate. My surgeon recommended no radiation but my medical onc said definitely "yes". My radiation onc said "no" not worth the risks...radiation would only increase my chances of survival by 2-3 %, so NO radiation for me. I have complete trust in the radiation onc so I have peace of mind with this decision. Now, it's hormone therapy. I wonder about the side effects and risks. I don't know which drug I'll be on. I changed to a new medical onc. Glad I did. Thanks to all who have sent me hugs and prayers. I look forward to your cntinuing support.

    1 Comment
  5. 5
    • papayagirl
    • Experience with Invasive Lobular Ca...
    over 5 years ago
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    Hormone therapy

    Drug or Chemo Therapy

    i have not had side effects except for hot flashes but Dr tells me bone pain will begin and get worse over time. We'll see...I am on Arimadex once/day.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    2 Comments
  6. 6
    • papayagirl
    • Experience with Invasive Lobular Ca...
    almost 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
  7. 7
    • papayagirl
    • Experience with Invasive Lobular Ca...
    almost 5 years ago
    papayagirl's Avatar

    Celebration

    This person has yet to add any details about this experience.

    0 Comments
  8. 8
    • papayagirl
    • Experience with Invasive Lobular Ca...
    over 4 years ago
    papayagirl's Avatar

    Diagnosed

    Oh No

    I have now been diagnosed with lymphedema Very upsetting.

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