macbarbie's Journey with Adenocarcinoma, Lung Cancer

Patient: Lung Cancer > Non-Small Cell > Adenocarcinoma

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: about 7 years ago, Female, Age: 59, Stage IV, EGFR mutation positive: No

  1. 1
    • macbarbie
    • Experience with Adenocarcinoma, Lung...
    over 5 years ago
    macbarbie's Avatar

    Oh No

    I didn't smoke and went to the family physicians for over a year with a cough, hoarseness, 30 lb weight loss, and many other lung cancer symptoms. They told me I had allergies, or indigestion....and wanted to know my diet plan. I saw 4 different doctors even suggested I could have cancer. I was ignored until it was too late....Started with STAGE 3B, but told last summer after it mets to the brain I was probably STAGE IV the whole time. It is in my lymph nodes, bones, and I had 4 tumors in my brain.

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  2. 2
    • macbarbie
    • Experience with Adenocarcinoma, Lung...
    over 5 years ago
    macbarbie's Avatar

    Procedure or Surgery

    Inoperable

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • macbarbie
    • Experience with Adenocarcinoma, Lung...
    over 5 years ago
    macbarbie's Avatar

    Drug or Chemo Therapy

    Well it is fairly easy to do if you have a power port. My chemo cocktail location is about an hour away, I can't drive, so that is a hassle since I have to have chemo for the rest of my life. Side effects are horrendous but you get used to them I guess. I spend a lot of time in bed because of fatigue, loss of focus, serious "chemo brain". Because of the cancer in the bones I have a lot of bone aches. However, I do my best to stay positive. Once I am sitting in the chair it can be relaxing, and the oncology nurses are fabulous. Then know me well since I have been going since last August 2010. I also take Xeloda for 14 days....a type of chemo pill.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • macbarbie
    • Experience with Adenocarcinoma, Lung...
    over 5 years ago
    macbarbie's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  5. 5
    • macbarbie
    • Experience with Adenocarcinoma, Lung...
    over 5 years ago
    macbarbie's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  6. 6
    • macbarbie
    • Experience with Adenocarcinoma, Lung...
    over 5 years ago
    macbarbie's Avatar

    Radiation

    I have had 3 rounds of radiation. First to my chest/lymph nodes. then whole brain radiation where your head is bolted down by a mesh mask, then to my spine...again with a mask. But without it I would be dead. You hate it but you know you want to survive so you calm yourself down to survive it. I prayed several "Hail Mary's" through radiation.

    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  7. 7
    • macbarbie
    • Experience with Adenocarcinoma, Lung...
    over 5 years ago
    macbarbie's Avatar

    Clinical Trial

    I receive my treatments at the Cancer Center of Santa Barbara, and the Sansum Clinic in Santa Barbara. I have visited City of Hope and Stanford Medical Center. No one had anything to offer beyond what I was already receiving in Santa Barbara. Says wonderful things about my oncologist that he is at the top of his game, but frustrating that I don't have other options. Tested for both EGFR and ALK....negative on both.

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  8. 8
    • macbarbie
    • Experience with Adenocarcinoma, Lung...
    over 5 years ago
    macbarbie's Avatar

    Side Effects

    Too many to mention....Cancer becomes you life when it is chronic. All your decisions are based on your treatment calendar and when you MIGHT feel ok.

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