MINKROCH's Journey:

Patient: Leukemia > Acute Myeloid Leukemia (AML) > APL (M3)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 6 years ago, Male, Age: 66

  1. 1
    • MINKROCH
    • Experience with APL (M3), which Usual...
    over 5 years ago
    MINKROCH's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Currently in remission and taking maintenance medications for the next 2 years. The medications include: ATRA, methotrexate, and mercaptopurine. The primary side effects are nausea and generalized itching. I have had experience with methotrexate toxicity which resulted in chronic diarrhea and hospitalization. The medical team reduced my dose to 1/4 but have decided to re-up my dose to 1/2, which causing me anxiety...don't want to go through toxicity again. I am also finding myself fatigued when taking ATRA which is scheduled every three months for a 2 week period (10 pills daily). This journey has had a significant impact on my life, and I can't wait for this chemo to be over!

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. 2
    • MINKROCH
    • Experience with APL (M3), which Usual...
    over 5 years ago
    MINKROCH's Avatar

    Nausea/Vomiting

    Side Effects

    Nausea and generalized itching

    0 Comments
  3. 3
    • MINKROCH
    • Experience with APL (M3), which Usual...
    over 5 years ago
    MINKROCH's Avatar

    Hair is back

    Celebration

    Began maintenance in January 2012 and anticipate maintenance therapy for 2 additional years.

    0 Comments
  4. 4
    • MINKROCH
    • Experience with APL (M3), which Usual...
    over 5 years ago
    MINKROCH's Avatar

    Hospitalization

    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  5. 5
    • MINKROCH
    • Experience with APL (M3), which Usual...
    about 5 years ago
    MINKROCH's Avatar

    Psychosocial

    Other Care

    I have been seeing a psychologist weekly for depression related to my leukemia diagnosis, and have found this very helpful. I felt the need to have someone other than family and friends to express my feelings, changes, and frustrations. I encourage others to explore their issues and feeling with a trained counselor.

    1 Comment
  6. 6
    • MINKROCH
    • Experience with APL (M3), which Usual...
    almost 5 years ago
    MINKROCH's Avatar

    IVC Filter

    Procedure or Surgery

    My medical team determined that I needed an IVC filter after having blood clots to both of my lungs simultaneously. The filter prevents any clots from reaching my lungs, and I am on Coumidin on a daily basis due to my clotting episodes and a genetic clotting disorder.

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  7. 7
    • MINKROCH
    • Experience with APL (M3), which Usual...
    almost 5 years ago
    MINKROCH's Avatar

    Diarrhea

    Side Effects

    After having diarrhea for over a month affecting my immune system and liver functions it was determined that I was experiencing Methotrexate toxicity, due to slowly metabolizing the medication.

    0 Comments
  8. 8
    • MINKROCH
    • Experience with APL (M3), which Usual...
    almost 5 years ago
    MINKROCH's Avatar

    Bone Biopsy

    Procedure or Surgery

    Most difficult part of bone biopsy procedure is waiting for the results!

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
  9. 9
    • MINKROCH
    • Experience with APL (M3), which Usual...
    almost 5 years ago
    MINKROCH's Avatar

    Remission

    Celebration

    My bone biopsy came back indicating that I remain in molecular remission!

    3 Comments