Aimeesmom's Journey with Rare Cancers

Lost Loved One: Rare Cancers

Patient Info: Diagnosed: over 9 years ago, Female

  1. 1
    about 5 years ago
    Aimeesmom's Avatar

    Misdiagnosed

    Oh No

    My child was misdiagnosed for over 6 months, then it was found that she had a DIPG brain tumor. Demanded an MRI for persisted headache's was told they were just migraines. Told hic-ups were acid re-flux. Told shortness of breathe was Asthma. No tests were ever giving just drug, after drug, after drug that wasn't needed.

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  2. 2
    about 5 years ago
    Aimeesmom's Avatar

    External radiation

    Radiation

    Aimee never complained about any pain or discomfort from radiation. Seemed to handle it very well with no side effects.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    about 5 years ago
    Aimeesmom's Avatar

    Lost loved one

    Loss

    Losing a child to cancer is the most devastating experience a parent can have.

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