Caferich's Journey with Non-Hodgkin Lymphoma (NHL)

Patient: Non-Hodgkin Lymphoma (NHL)

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 7 years ago, Male, Age: 53

  1. 1
    • Caferich
    • Experience with Non-Hodgkin Lymphoma ...
    over 5 years ago
    Caferich's Avatar

    Surgery

    Procedure or Surgery

    I went into the hospital with severe abdominal pain. An hour later I was in the operating room to find the cause of my pain. My appendics was removed and at that point it was discovered that my colon had ruptured. So I was opened up to do a colon resection. The next morning I woke up to be told I had NH lymphoma and that a pet scan was needed to determine the extent. Lyphm nodes were affected from my neck to my grion area. The fear set in almost imediately.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    • Caferich
    • Experience with Non-Hodgkin Lymphoma ...
    over 5 years ago
    Caferich's Avatar

    Surgery

    Procedure or Surgery

    Eight days pass and I went home and schedule a pic line to be put in a few days later. That was a pretty simple procedure with little or no pain. However I ended up with pneumonia shortly there after and possibly a staff infection. Another week of hospitalization to fix that and than a port was put in for the coming chemo. A few days later I once again had severe abdominal pain. Cat scan and ultra sound revealed a gallbladder problem and off to surgery to remove that. By this time I'm on a first name basis with the entire 3rd floor nurse staff. They were a pleasant bunch and greatly appreciated.

    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Caferich
    • Experience with Non-Hodgkin Lymphoma ...
    over 5 years ago
    Caferich's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I went on into the cancer center to have the bone morrow taken and that wasn't so pleasant but I got through it and was able to start chemo. The first day was overwhelming with information and I don't really know if I could remember much more than being there all day. So many medication for so many things. Several cycles later and the side affect really kick me around. Sick simply wouldn't cover it, than the hair loss, but that just the way it goes. The abdominal pain was minor but the legs and joint pain just got worse. I lost 44 pounds which put me at 150, so I imagine I looked like XXX. But I didn't care I just wanted it all to over with. Two months into the treatment and once again I have pneumonia and hospitalized.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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