OurBraveBoy's Journey with Precursor T-Lymphoblastic Lymphoma/Le...

Family/Friend: Non-Hodgkin Lymphoma (NHL) > T-Cell Lymphoma > Precursor T-Lymphoblastic Lymphoma/Leukemia

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: almost 5 years ago, Male, Age: 6

  1. 1
    over 4 years ago
    OurBraveBoy's Avatar


    Oh No

    Our world stopped turning a bit recently. Our son, who will be 3 next month, was diagnosed just yesterday with Lymphoblastic Lymphoma. Approximately 1 month ago, we noticed several enlarged lymph nodes so made our first doctors appointment. It became clear after two rounds of blood tests producing elevated lymphocytes, antibiotics, and still present enlarged nodes, that we needed to do a biopsy. Biopsy was done on Thursday and we were told on Friday the life altering results. He will go to Children's Hospital Monday to have a CT scan and chest x-ray. We will also have to have a spinal tap and bone marrow biopsy done next week. It is still undetermined, and will be verified next week, if this is only Lymphoblastic Lymphoma or if it is Lymphoblastic Luekemia. Other than the enlarged lymph nodes, you would not know anything was wrong with our boy. He is a happy, energetic little boy. We would give anything to not have him go through the upcoming pain he will endure. We know we are in good hands but it is a helpless feeling knowing you can't do anything to help the situation.