migsoon's Journey with Prostate Cancer
Survivor: Prostate Cancer
Patient Info: Finished active treatment more than 5 years ago, Diagnosed: over 18 years ago, Male, Age: 80
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Experience Icon Descriptions
Procedure: Drag this icon to show a procedure.
Radiation: Drag this icon to show a specific radiation therapy experience.
Drug Therapy: Drag this icon to show a specific drug therapy experience.
Clinical Trial: Drag this icon to show a clinical trial experience.
Side Effect: Drag this icon to show experience with a specific side effect.
Oh No: Drag this icon to show when something bad happened (e.g., cancer’s back, lost job).
Celebration: Drag this icon to show when something good happened (e.g., last treatment, hair is back).
Loss: Drag this icon to show a time of loss (e.g., lost hair, lost loved one).
Decision Point: Drag this icon to show a time when you had to make a tough decision.
Other Care: Draft this icon to show a time when you needed other care (e.g., hospice, psychotherapy).
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Radiation
Side effects include radiation proctitis which I have had surgically repaired several times.I still have episodes of bleeding and itching plus severe muscle spasms and fecal leakage. I have a portable electro stimulator that does wonders for the spasms, but it can't be worn anyplace which locks me down for over an hour 3-6 times a day when the spasms are bad. I have lidocaine ointment for topical application, neomycin and cortisone suppository compound that I use twice a day when it's bad, and I take narcotics for the pain and valium for the muscle spasms as needed. There apparently isn't a free cure for this, and I'm to poor to consider "options". I can't afford specialists anymore as I have a bad form of medicare called humana gold plus that barely covers the basics. We lost the home and did chapter 7, and we are both 70 now.
Decision Point
Is it just me, or has there been an overall movement by medical professionals to place people over 70, on Medicare or some "health plan" like "Humana Gold Enhanced" to treat you like a second class citizen? Reason I ask is because of my experiences as a patient when I had private health insurance and a good paying job as opposed to having this insurance plan which pays the medical people at a much lower rate. I waited over an hour to see a physician I used to get in to see in minutes. I had to leave as I ran out of time. I still have a life and a job. If I can't hang on to the latter,the other won't matter. Also sent a FAX to a specialist I have been a patient for several years. Never received a response... I would change Dr.s but why? I don't believe my insurance would allow it anyway.
Side Effects
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