Louise's Journey with Chondrosarcoma, Bone Cancer

Survivor: Bone Cancer > Chondrosarcoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 5 years ago, Female, Age: 69

  1. 1
    • Louise
    • Experience with Chondrosarcoma, Bone Ca...
    about 5 years ago
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    Diagnosed

    Oh No

    6/11 I was diagnosed with chondrosarcoma of the cervical spine - a rare place for this type of cancer (in C2-C5 vertebrae).

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  2. 2
    • Louise
    • Experience with Chondrosarcoma, Bone Ca...
    about 5 years ago
    Louise's Avatar

    External radiation

    Radiation

    I had SBRT and the mask was uncomfortable, not painful. This was because I had to lay completely still to avoid paralyzing the spinal cord, since C2-C5 were affected. The mask didn't fit well around the jaw area, and I had to jut my jaw out to fit the mask during the procedure. The side effects were minimal. The pain had slowly decreased over the past 6 months as the tumor has stopped growing. I have been able to drive the past month since I need to take less pain meds. The pain has been the hardest thing to deal with, but it is slowly decreasing.

    Painless Experience: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • Louise
    • Experience with Chondrosarcoma, Bone Ca...
    about 5 years ago
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    Allergic reaction

    Side Effects

    My oncologist said the reaction was due to the layers of cells separating (not really an allergic reaction, there is no "other" above in the checkbox). I had difficulty swallowing, sore throat, laryngitis and a dry cough for 2 weeks after SBRT. I was prescribed a steriod med for the next month to reduce swelling. After that, I've needed pain meds for neck pain.

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  4. 4
    • Louise
    • Experience with Chondrosarcoma, Bone Ca...
    about 5 years ago
    Louise's Avatar

    Finished treatment

    Celebration

    The cancer has stopped growing. I am hoping the tumor will shrink, this can take a long time.

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