scootersmom's Journey with Ductal carcinoma in situ (DCIS)

Survivor: Breast Cancer > Ductal carcinoma in situ (DCIS)

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 6 years ago, Female, Age: 54, Stage 0, HER2 Positive: Don't Know, ER Positive: Yes, PR Positive: Yes

  1. 1
    about 5 years ago
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    Diagnosed

    Oh No

    When I went for my routing mammogram, I was called back a week later for a repeat. Something was there that needed a second look. Immediately following the repeated mammogram I was told to wait while the radiologist looked at the films. Don't get dressed yet. Suddenly the nurse came into the waiting room and told me to follow her I needed an ultrasound. Once the ultrasound was done I was told to get dressed and to wait. The nurse then came and go me to meet with the radiologist. He found microcalcifications. He told me that most of the time these are nothing but they can be pre-cancer. We should schedule a biopsy soon. I walked out of there in tears. I got in the elevator and dried my tears and tried to put on a happy face. I was on my way to the ICU to visit my brother. He was brought to the hospital a few days earlier near death for other medical reasons. The biopsy was scheduled for a week later. The results came back Ductal Carcinoma In Situ. This was the first of several OH! NO! moments.

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  2. 2
    about 5 years ago
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    Lumpectomy

    Procedure or Surgery

    After the biopsy I was scheduled for a lumpectomy. The thought was lumpectomy, radiation then hormone treatment. Didn't work out that way. Had the lumpectomy and did not get "clean margins". This meant that I would need either another lumpectomy or a mastectomy. In addition, the specimen that they took showed DCIS from end to end and in one of the slides it also showed LCIS. The surgeon was very supportive and explained everything in detail. His recommendation was a mastectomy. The thought was that another lumpectomy would not produce clean margins. I was told to talk to an oncologist, plastic surgeon and my primary doctor before making any decision.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    about 5 years ago
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    Mastectomy

    Procedure or Surgery

    Two months after the lumpectomy, I was back in surgery having a bi-lateral mastectomy with tissue expanders placed for reconstruction. I was in the hospital for 2 1/2 days.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  4. 4
    about 5 years ago
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    Infection

    Oh No

    About a week after my surgery, I developed a red spot just below one of the incision lines. Went to the plastic surgeon and yep an infection had begun. It was thought that it was celullitis. (sorry about the spelling). Received antibiotics and had to go back to the plastic surgeon twice a week to check on it. The drugs did not seem to help. About three weeks later I was admitted to the er for a round of IV antibiotics. The next day back at the plastic surgeon. This time the area started draining. Felt like a dam broke. I left his office with the side of my pants soaked. Thought all was well. Came back two days later for a followup and was still draining but no pain.

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  5. 5
    about 5 years ago
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    Severe Pain from Infection

    Oh No

    Thought things would be okay. Woke up in the middle of the night in severe pain. Went to work and anytime something touched the area that had been draining (bra, shirt. bandage) I would cry. Went back to the plastic surgeon that afternoon. Before he could even say hello I began to cry. He numbed me up and then checked the area. I was then walked over to the hospital and admitted. The thought was I would be in there for three days of IV antibiotics.

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  6. 6
    about 5 years ago
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    Surgery

    Procedure or Surgery

    After the latest Oh no. I was taken to surgery to clean out the infected area. When the plastic surgeon did what he needed to do it was decided that the expander that had been in place was jeopardized and had to be removed.

    Went as Expected: Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  7. 7
    about 5 years ago
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    Surgery

    Procedure or Surgery

    Back in surgery again. This time to put the expander back in that was removed two months earlier. Now beginning to get back on track.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  8. 8
    about 5 years ago
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    Expander fillups

    Other Care

    Now began the weekly fillups to the expanders.

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  9. 9
    about 5 years ago
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    Breast Reconstruction (Implant)

    Procedure or Surgery

    Finally back to surgery to have the tissue expanders removed and the permanent implants inserted.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  10. 10
    about 5 years ago
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    treatment

    Celebration

    Because of the mastectomy and receiving clean margins from that, I was told that I would not need radiation or hormonal therapy.

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  11. 11
    about 5 years ago
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    Birthday

    Celebration

    I've celebrated another birthday and I am still waiting for what I hope to be the final surgery. I received my cancer diagnosis nine days after my birthday last year. I am glad to say that if you count survivorship from the day of diagnosis, then I am now a survivor of one year and what a long year it has been.

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  12. 12
    almost 5 years ago
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    Year since lumpectomy

    Celebration

    Feb 22 was the one year mark since the lumpectomy.

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  13. 13
    almost 5 years ago
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    Anniversary

    Celebration

    April 26th marks one year since the bilateral mastectomy. So far still doing good.

    2 Comments
  14. 14
    over 4 years ago
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    another unscheduled surgery

    Oh No

    Time for another surgery to correct one of the implants that just did not heal correctly.

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  15. 15
    over 4 years ago
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    To correct implant

    Procedure or Surgery

    Now waiting for followup visit to try to find out when I can get back into my normal routine.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  16. 16
    almost 4 years ago
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    Going Crazy Waiting

    Other Care

    Waiting for the final reconstruction surgery that is being elusive. Had my implants since October, 2011 and still waiting for nipple reconstuction. Implant on one side is just being difficult and not doing what is needs to do. Has one surgery to corret it so far and still not where it needs to be. In the waiting game again and feeling frustrated!!

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  17. 17
    almost 4 years ago
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    Anniversary

    Celebration

    Two years since diagnosis and bilateral mastectomy. Still no further evidence of the disease other than my battle scars!!! Now on yearly plan with the oncologist unless my primary takes over and does testing, If so then I can stop seeing the oncologist. YIPPEE!!!

    1 Comment