DeniseD's Journey:

Patient: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Follicular Lymphoma

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 6 years ago, Female, Age: 64, Stage III

  1. 1
    • DeniseD
    • Experience with Follicular Lymphoma
    over 4 years ago
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    I am in watchful wait

    Other Care

    I have folicular lymphoma in grion, both side, in the abdomen, and the neck. I have been told, unless a major organ becomes affected, no treatment is needed. I did get a second opinion. Both doctors agreed.

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  2. 2
    • DeniseD
    • Experience with Follicular Lymphoma
    over 4 years ago
    DeniseD's Avatar

    Problem with doctor

    Oh No

    My doctor failed to answer my questions and wouldn't even respond to my husband, acting as though he was'nt in the room. I made the choice to stop seeing him in November 2011

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  3. 3
    • DeniseD
    • Experience with Follicular Lymphoma
    over 4 years ago
    DeniseD's Avatar

    Choosing a new doctor

    Decision Point

    After much research, and a visit to a top notch Cancer center, I discovered my lack of insurance severely affected my ability to recieve quality care at a lot of facilities. I have paid all bills at time of service, or within 30 days. I was given good advise from primary doctor and am now seeing a very qualified physician at the University. What a difference. Mine and my husband's questions have been answered in a very professional manner. For the first time since my diagnoses, I have confidence in my doctor.

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  4. 4
    • DeniseD
    • Experience with Follicular Lymphoma
    over 4 years ago
    DeniseD's Avatar

    Fatigue (tiredness)

    Side Effects

    This seems to be my biggest obstacle. This varies from day to day. At times I feel like a child that missed their nap, I hate that. I have always been a very active person and now I pace myself. I do realize I have been blessed with excellent health until now, so I try to keep that in mind. I also realize How much worse it could be.

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  5. 5
    • DeniseD
    • Experience with Follicular Lymphoma
    over 4 years ago
    DeniseD's Avatar

    Psychosocial

    Other Care

    I have a good support group to address issues of depression. I go every week and it has certainly helped.

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  6. 6
    • DeniseD
    • Experience with Follicular Lymphoma
    over 4 years ago
    DeniseD's Avatar

    Lost loved one

    Loss

    On the 14th of January 2013, I lost my life partener to heart disease. My life has been turned upside down, but I intend to land on my feet. We did everything together and I always knew I could count on him for everything. There will be some major changes to come.

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  7. 7
    • DeniseD
    • Experience with Follicular Lymphoma
    about 4 years ago
    DeniseD's Avatar

    Bone marrow, port, CAT, PET, teeth pulled, EKG, and biopsy

    Procedure or Surgery

    Wow, all this in the past 3 weeks. It seems my cancer has decided to get aggressive, so my doctor has a quick defensive plan in place. I start R-Chop on the 29th. I am very optimistic, as I am in the hands of my God and an awesome doctor.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  8. 8
    • DeniseD
    • Experience with Follicular Lymphoma
    about 4 years ago
    DeniseD's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Well it is early in the game. Yesterday was the first R-CHOP treatment. I have not experienced any negative effects yet, however I know it is too soon to expect the impact. I am emotionally up for the challenge, as I am a looking forward to completing my bucket list. I have the support of many wonderful family and friends. I will report when Things are not so comfortable as well, that's when my support team will kick in. I am in it to win it.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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