Adrienne's Journey:

Patient: Thyroid Cancer > Papillary Carcinoma > Follicular Variant (also called Mixed Papillary-Follicular Variant)

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: about 12 years ago, Female, Age: 50

  1. 1
    • Adrienne
    • Experience with Follicular Variant (a...
    about 6 years ago
    Adrienne's Avatar

    Cancer has spread/Metastasized

    Oh No

    I was in shock to find out that I had cancer in the first place, since there is no cancer in my family. I was also told that this is the good cancer to have. How can any cancer be the good cancer to have? Now it is in my lungs, and just this past January went into my ribs. I think the hardest thing for me to deal with, was the fact that my initial cancer diagnosis took over 6 weeks after my surgery to determine what type it was. Four hospitals evaluated the pathology slides. Funny thing was, not all were conclusive of the same cancer determination. I obviously have an aggressive strain.

    0 Comments
  2. 2
    • Adrienne
    • Experience with Follicular Variant (a...
    about 6 years ago
    Adrienne's Avatar

    Surgery

    Procedure or Surgery

    My thyroid surgery was approximately 5 1/2 hours, much longer than my husband and family were expecting, but my surgeon was amazing and took everything out that looked suspicious including many lymph nodes. I was warned that my vocal chords might be affected, but they weren't. My parathyroid stopped working, so I had to stay in the hospital for a total of 4 days, and take lots of calcium. It actually wasn't easy taking the pills after having a throat surgery, but at least I was informed on how important it would be for me to continue calcium supplements.

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  3. 3
    • Adrienne
    • Experience with Follicular Variant (a...
    about 6 years ago
    Adrienne's Avatar

    Pain medicine

    Drug or Chemo Therapy

    After my lung biopsy surgery in March 2010, I had to take a variety of pain medications. That was an extremely hard recovery. And this past January, when the cancer actually fractured an inch and half of my rib, I was again taking strong meds to help with pain management, but after the radiation therapy the pain was much less after about 3 days. So much more tolerable. Prior to the radiation therapy, I couldn't even lift a casserole dish out of the oven. The pain was that intense, but thank goodness the one radiation treatment I had worked and no bone lesions are present at this time.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    • Adrienne
    • Experience with Follicular Variant (a...
    about 6 years ago
    Adrienne's Avatar

    External radiation

    Radiation

    I had one large radiation therapy to the rib and it worked. I think the only thing that was hard to deal with was the fact that the cancer was now in my bone and traditional radioactive iodine treatments were no longer working for me. It was so hard not to cry while I was receiving that treatment, it was just shocking that now the cancer was not only in my lungs, but also in the rib and no traces at all in the neck area.

    Painless Experience: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments