jewels4julie's Journey:

Patient: Breast Cancer > Invasive Lobular Carcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 6 years ago, Female, Age: 55, Stage IIB, HER2 Positive: Yes, ER Positive: No, PR Positive: No

  1. 1
    over 5 years ago
    jewels4julie's Avatar

    Problem with doctor

    Oh No

    I had mammograms for the past 10 years, and in September 2012 I asked my doctor about having a prophylactic mastectomy because I was afraid that I may get breast cancer. My mother was diagnosed with triple negative breast cancer 10 years ago, and I have (had) very dense, fibrous breasts. I had a hard time with breast examination because my breasts were so "lumpy". I have a 16 year old daughter with cerebral palsy, who is totally dependent on us, and I wanted to be proactive so that I can be there for her and my other children. My doctor told me that I was being way too cautious, and told me that she would follow my breast health. My husband told me that he thought he felt a lump in my breast (I know, tmi...) so he urged me to get a mammogram. The mammo results did not show any changes from prior mammo's, so I felt that everything was fine. About a month later, I noticed a tiny drop of blood in my bra, and I completely freaked out! The next day, I contacted my doctor and she sent me to a breast specialist to find out what was causing it. On May 30, 2013, my doctor called me and gave me the news that I had breast cancer. I wish I had not listened to my doctor in September 2012 when I asked about having a mastectomy, and she basically told me I was crazy and under too much stress from work. If I had known that my cancer was not visible on mammograms, and could only be found by ultrasound or MRI, I would have insisted that she at least send me for an ultrasound.

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  2. 2
    over 5 years ago
    jewels4julie's Avatar

    Double Mastectomy

    Procedure or Surgery

    I had a tissue-sparing bilateral mastectomy and had tissue expanders placed on both sides. The tissue expanders were very painful for about 3 weeks. Once the muscle started healing, there was not as much pain.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    over 4 years ago
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    Finished treatment

    Celebration

    I'm so happy that I finished the 18 Herceptin treatments in September. Thank God the side effects from Herceptin were minimal.

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  4. 4
    over 4 years ago
    jewels4julie's Avatar

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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