Powerofhope's Journey:

Survivor: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Primary Central Nervous System (CNS) Lymphoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 9 years ago, Male, Age: 52, Stage IV

  1. 1
    over 7 years ago
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    Surgery

    Procedure or Surgery

    Multiple surgeries: Brain biopsy, then later an Ommaya reservoir was installed

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  2. 2
    over 7 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Chemotherapy for four cancers were all different with varying side effects.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    over 7 years ago
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    I had to decide whether or not to have a second autologous stem cell transplant.

    Decision Point

    I have had 4 cancers in all. I was diagnosed with systemic NHL in 1999 and recurred in 2006 when I had my first auto transplant. I was diagnosed with PCNSL in January 2012, achieved remission, then recurred in summer of 2012. I went to Sloan Kettering and received a very aggressive treatment which gave me another remission. This time I was offered an opportunity to have a second autologous transplant. This was the most aggressive treatment I have ever received, but I am recovering from the transplant and I am able to work again and, most importantly, continue raising our two little boys.

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  4. 4
    over 7 years ago
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    Made it out the other side in order to continue raising our two sons (8 & 7) and I've been able to go back to work.

    Celebration

    Every single day is a celebration. My prognosis was extremely poor. The great healthcare professionals at Sloan Kettering Memorial gave me yet another chance.

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  5. 5
    over 7 years ago
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    Milestones

    I would like to wish everyone a Happy Thanksgiving! One year ago I was at Sloan Kettering having my stem cells harvested for my second ASCT while my wife and two boys were at the Macy's Parade. I was truly grateful to have them in NYC with me during my 4 days of apheresis, but today I am home with my family preparing a feast and feeling so grateful to everyone in my life. I am especially grateful to the army of healthcare professionals who have worked so hard to make everyday of my life possible for over 14 years! The girl that cleaned my room during my 28 days in isolation last January sent me a text this morning to wish us well. This is the girl who gave so much to me and made my journey through my transplant bearable by sharing her own life story with me. She brought tears to my eyes that this morning when she thanked me!! One day I will find a way to show her and the rest of my army how grateful I am to them. Life is truly good and I look forward to sharing stories and information with the members of this support group for years to come. Enjoy your day everyone!!

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  6. 6
    over 7 years ago
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    Spent the Holidays at home with my wife and our two sons.

    Milestones

    One year ago I was in a hospital room at Sloan Kettering having my second autologous transplant. This week was the week when my army of healthcare professionals worked very hard to manage my pain, which was by far the greatest pain I'd ever felt in my life despite 3 prior cancers and one prior transplant. I missed my oldest son's birthday and Christmas last year in order to have the most aggressive treatment possible in an attempt to cure my cancer for good. I explained to our boys that I was sacrificing the one for the many. This holiday season was unbelievable! I appreciated every minute more than I ever had. Gratitude is truly the greatest gift I received from my cancer experience. Every minute that you spend feeling grateful is a minute you are truly happy.

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  7. 7
    over 7 years ago
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    Milestones

    Yesterday marked the one year anniversary of my discharge from Sloan Kettering where I had my second autologous stem cell transplant. I spent 28 days in isolation, but found reasons to be grateful every single one of them. This past month I've been reflecting on those days and on the great people who took care of me there and helped me through the toughest days of my life. Feeling very grateful for my army at Sloan and for how far I've come this past year. I am back to work and have been able to relearn things as well as learn new things. I was out of work for nearly two years. My docs were not sure what I would be able to do cognitively after the treatment I received, but we are all thrilled with how things are progressing!

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