kulaken's Journey:

Patient: Brain and Spinal Cord Tumors in Adults

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 6 years ago, Male, Age: 54

  1. 1
    • kulaken
    • Experience with Brain and Spinal Cord ...
    over 5 years ago
    kulaken's Avatar

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  2. 2
    • kulaken
    • Experience with Brain and Spinal Cord ...
    over 5 years ago
    kulaken's Avatar

    Brain biopsy

    Procedure or Surgery

    Life altering experience!! , as a self employed carpenter , i can no longer drive or use my tools in a safe manor , due to the fact this tumor and its edema is putting pressure in my right visual lobe and messing with my eyesight , as well as, disorientation, some confusion, short term concentration , not to mention the emotional roller coaster ride . After 12 full brain radiation treatments out of 27 planned , combined with the steroids , it is hard to get through each day feeling any where close to normal ..

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. 3
    • kulaken
    • Experience with Brain and Spinal Cord ...
    over 5 years ago
    kulaken's Avatar

    Anemia medicine

    Drug or Chemo Therapy

    This DEXAMETHASONE, is a nasty steroid to deal with , it causes extreme anxiety and weight gain ,, but seems to be helping shrink the edema for now , having less seisures , and gaining some balance back , or just getting more accustom to the loss of eyesight, not to sure yet ,,

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments