Powerofhope's Journey:

Survivor: Non-Hodgkin Lymphoma (NHL)

Patient Info: Diagnosed: almost 22 years ago, Male, Age: 51, Stage II

  1. 1
    over 7 years ago
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    Surgery

    Procedure or Surgery

    A small bowel resection was the beginning of my cancer journey. It was during this surgery that it was discovered that I had NHL.

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  2. 2
    over 7 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    The first couple of rounds were the toughest. After that, I went to work everyday and even worked out at the gym and played squash. For the record, I was only 30 years old.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
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  3. 3
    over 7 years ago
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    Radiation to Abdomen

    Decision Point

    In the spring of 2000 my oncologist presented me with an option to have 20 courses of radiation once my CHOP therapy ended. At that time he told me that, statistically, my odds of 5 year survival were 65% with CHOP therapy, but the odds would increase to 85% with the radiation therapy. They computer imaging to determine the damage that I would experience to my kidneys. They estimated that radiation would kill 35% of my kidney volume. I took the risk for added life expectancy. I should mention that I have had enormous amounts of chemotherapy since that time and my kidneys have miraculously held up wonderfully. I attribute this to my age, my diet, and my fluid intake.

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  4. 4
    over 7 years ago
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    External radiation

    Radiation

    The effects of radiation to the abdomen were cumulative. By the end of the 20 treatments, I became very fatigued and my appetite decreased. I was told I would lose 35% of my kidney volume due to the radiation. I am happy to report, my kidneys held up through 3 more cancers including an extremely aggressive treatment regimen for PCNSL which included an extremely toxic stem cell transplant. I had my first auto transplant in 2007. My second was in January 2012.

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
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  5. 5
    over 7 years ago
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    Cancer is back/Recurred

    Oh No

    In December '06 I experienced pain in my flank area and in my groin. A CAT scan determined that I had a golfball sized tumor sitting on my kidney.

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  6. 6
    over 7 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    This time around I was treated with ICE therapy with Rituxan, commonly referred to as RICE therapy. At the time this was considered to be the second line of defense, which was made necessary due to the fact that I had received maximum doses of the CHOP drugs due to my young age. These drugs caused more nausea and a stomach soreness that is hard to forget.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  7. 7
    over 7 years ago
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    Stem Cell Transplant or not, and where to have it.

    Decision Point

    I travelled to Dana Farber in Boston where they recommended an autologous stem cell transplant. They explained that this was the recommended therapy for recurrent NHL. Dana Farber's plan was to place me isolation for a month. I was then offered an outpatient transplant at Albany Medical Center under the direction of a doctor who performed many transplants at Sloan Kettering prior to starting his own stem cell clinic in Albany. This was a great decision.

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