MsMope's Journey:

Patient: Endometrial (Uterine) Cancer

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 6 years ago, Female, Age: 68, Stage I

  1. 1
    • MsMope
    • Experience with Endometrial (Uterine) C...
    over 6 years ago
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    I have uterine papillary serous carcinoma. Oh no!

    Oh No

    This person has yet to add any details about this experience.

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  2. 2
    • MsMope
    • Experience with Endometrial (Uterine) C...
    over 6 years ago
    MsMope's Avatar

    Surgery

    Procedure or Surgery

    DaVinci robotic radical hysterectomy et al for UPSC per SOP 12/16. Dreamy post-op. Pain and nausea managed with oral meds day after surgery. Stool softeners and laxatives are good things. Third post-op day discomfort managed with ibuprofen. Narcotic pain relievers are necessary for short term but have too many negative side effects. I need to remember to take it easy now. I just had surgery! Good bye lady parts - RIP.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • MsMope
    • Experience with Endometrial (Uterine) C...
    over 6 years ago
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    Post-hysterectomy appointment and cancer staging

    Milestones

    Received post-hysterectomy check-up and staging. It was a single UPSC polyp anchored to the endometrium. Everything else was clean. Received treatment plan of 6 cycles of chemo and 3 of vaginal brachytherapy - perhaps concurrent (sandwich-like). Awesome team care via the Carbone Cancer Center @ UW Madison. Bloating/pelvic dependent edema and constipation still nuisances, but healing well. Post-op internal exam scared me, but was brief and not painful. Suggestion: concentrate on breathing. That always gets me thru. Took husband to Red Lobster for "nurse" of the month reward. He makes everything possible.

    2 Comments
  4. 4
    • MsMope
    • Experience with Endometrial (Uterine) C...
    over 6 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    First day of the first cycle - taxol/carbo for IA UPSC which is automatically grade 3. Pre-meds included dexamethason five 4 mg tabs 12 hours before chemo and 6 hours before. Pre-meds via IV 1/2 hour before chemo were Benadryl (50mg) and ranitidine (50 mg) and Zofran (16 mg) by mouth. Taxol ran in over about 3-1/2 hours followed by carbo over about an hour. The final normal saline flush was the only thing that burned as it went in. Chemo nurses were very proficient at pushing buttons on their IV pumps but made little to no connection with me on a human level. Maybe I didn't smile quite enough. My gyn onc MD does not recommend a port for 6 or less cycles. Ports have their own risks and discomforts. I prefer to have peripheral IVs. Time will tell if I made the right decision. Received an RX for Zofran (anti-nausea) to take every 12 hours for 48 hours and then every 8 hours prn. Other suggestions for OTC remedies etc are in information sheets. Gyn onc staff are available by phone 24/7. Total time at the cancer clinic was 9:40 am for lab and a doctor visit to about 5 pm when the pm nurse tossed me the post-chemo records I requested because she forget to provide them. Then she left without a goodbye. These young ones must not learn the same stuff I was taught. None considered how terrified I might be. I was just the thing attached to the IV pump. The takeaway for anyone doing this same chemo for the first time : it's not so bad. Now I just have to wait for the poisons I put in my body to do one thing or another.

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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