danellsar's Journey:

Husband will be having this procedure done in the next few days.

Chemo take 2. Different drugs, different regimen. Every 3 weeks instead of every 2. Hope it helps.

Ugh. Again.

PET scan #3 coming up this week. Scary and scarier each time.

He's so forgetful and distracted all the time!!!

With no clear path in sight, and no real prognosis, and ongoing pain and fatigue, depression has been one of his biggest enemies.

Tried Taxotere. Immediate and major allergic reaction. Blood pressure plummeted, started losing conciousness, pain. Nurse hit him with an epi pen and he was taken to ER. Now taking Taxol and Herceptin. Much easier!

Husband was hospitalized for 2 weeks on IV heparin due to large numbers of blood clots (brought on by chemo). In the last 3 weeks he's gained 30 lbs. from water retention and new meds. He can no longer walk or perform daily care.

2+ weeks in hospitals to treat blood clots. Released to a skilled nursing facility to try and regain strength and mobility. Hasn't been at home in over 3 weeks!

Massive edema due to multiple weeks hospitalization and IV fluids. Abdomen and legs are very swollen. Has gained 30 lbs in 3 weeks.

Meeting with palliative care team to bring in hospice.

My dear husband passed away this morning due to his cancer diagnosis. He had stage 4 adenocarcinoma of the esophageal junction. He was 46.

Just an update. It's been 2 years since my husband passed away. I'm remarried and starting over. It's still tough a lot of days, and kids have a hard time talking about their dad. I'm happy to help other caregivers who need a shoulder or a hand.