danellsar's Journey:
- 1 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 2 Side Effects Icon Side Effects
- 3 Radiation Icon Radiation
- 4 Procedure or Surgery Icon Procedure or Surgery
- 5 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 6 Side Effects Icon Side Effects
- 7 Procedure or Surgery Icon Procedure or Surgery
- 8 Procedure or Surgery Icon Procedure or Surgery
- 9 Side Effects Icon Side Effects
- 10 Side Effects Icon Side Effects
- 11 Side Effects Icon Side Effects
- 12 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 13 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 14 Other Care Icon Other Care
- 15 Side Effects Icon Side Effects
- 16 Decision Point Icon Decision Point
- 17 Loss Icon Loss
- 18 Loss Icon Loss
Spouse/Partner: Esophagus (Esophageal) Cancer
Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 11 years ago, Male, Age: 57
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Experience Icon Descriptions
Procedure: Drag this icon to show a procedure.
Radiation: Drag this icon to show a specific radiation therapy experience.
Drug Therapy: Drag this icon to show a specific drug therapy experience.
Clinical Trial: Drag this icon to show a clinical trial experience.
Side Effect: Drag this icon to show experience with a specific side effect.
Oh No: Drag this icon to show when something bad happened (e.g., cancer’s back, lost job).
Celebration: Drag this icon to show when something good happened (e.g., last treatment, hair is back).
Loss: Drag this icon to show a time of loss (e.g., lost hair, lost loved one).
Decision Point: Drag this icon to show a time when you had to make a tough decision.
Other Care: Draft this icon to show a time when you needed other care (e.g., hospice, psychotherapy).
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Chemotherapy
Drug or Chemo Therapy
This person has yet to add any details about this experience.
Anemia (low red blood cell counts)
Side Effects
This person has yet to add any details about this experience.
External radiation
Radiation
This person has yet to add any details about this experience.
Filter for blood clots
Procedure or Surgery
Husband will be having this procedure done in the next few days.
Chemotherapy
Drug or Chemo Therapy
Chemo take 2. Different drugs, different regimen. Every 3 weeks instead of every 2. Hope it helps.
Anemia (low red blood cell counts)
Side Effects
Ugh. Again.
PET scan!
Procedure or Surgery
PET scan #3 coming up this week. Scary and scarier each time.
Endoscopy to cauterize bleeding at tumor site and take biopsies.
Procedure or Surgery
This person has yet to add any details about this experience.
Anemia (low red blood cell counts)
Side Effects
This person has yet to add any details about this experience.
Chemo brain
Side Effects
He's so forgetful and distracted all the time!!!
Depression/Anxiety
Side Effects
With no clear path in sight, and no real prognosis, and ongoing pain and fatigue, depression has been one of his biggest enemies.
Chemotherapy
Drug or Chemo Therapy
Tried Taxotere. Immediate and major allergic reaction. Blood pressure plummeted, started losing conciousness, pain. Nurse hit him with an epi pen and he was taken to ER. Now taking Taxol and Herceptin. Much easier!
Anticoagulants for blood clots
Drug or Chemo Therapy
Husband was hospitalized for 2 weeks on IV heparin due to large numbers of blood clots (brought on by chemo). In the last 3 weeks he's gained 30 lbs. from water retention and new meds. He can no longer walk or perform daily care.
Hospitalization
Other Care
2+ weeks in hospitals to treat blood clots. Released to a skilled nursing facility to try and regain strength and mobility. Hasn't been at home in over 3 weeks!
Fluid in the abdomen (ascites)
Side Effects
Massive edema due to multiple weeks hospitalization and IV fluids. Abdomen and legs are very swollen. Has gained 30 lbs in 3 weeks.
Decision Point
Meeting with palliative care team to bring in hospice.
Lost loved one
Loss
My dear husband passed away this morning due to his cancer diagnosis. He had stage 4 adenocarcinoma of the esophageal junction. He was 46.
My mind/Sense of Humor
Loss
Just an update. It's been 2 years since my husband passed away. I'm remarried and starting over. It's still tough a lot of days, and kids have a hard time talking about their dad. I'm happy to help other caregivers who need a shoulder or a hand.