judalou's Journey with Ovarian and Fallopian Tube Cancer

Primary physician didn't believe in 125 test. 2 1/2 years prior advised gynocologist of family history. Stated I felt something was changing. No pain or spotting. No conclusive test results. But I knew....And now it's here...Stage 4

Surgeon looked into a calcified omentum cake plus cancer cells everywhere. Sewed me up...sent me home to more chemo.... CA125 # has dropped from 3500 to 100....What does this mean?

3 cycles before surgery...because of urgency reflected in high CA125 Now more chemo is indicated...Chemo not so bad but the "neulasta shot is a killer for 5-7 days of agony...

chemo brain or chemo fog is frustrating..some vision fuzziness....fatigue

Have now had 3 more cycles of chemo & gotten petscan in late May.....Surgery is now a possibility again or a maintence schedule of chemo...lower doses as needed to control tumor. Surgery will include removal of some large intestine to detach omentum cake. Different surgeons with more aggressive ideas. A leap of faith here. Will see my Oncologist tomorrow & hear her take on this new info.

This second surgery on August 2nd went far better than I had reason to expect. Chemo had reduced tumors & surgeon was so pleased to be able to remove almost all. Two small spots remain & will be treated with followup chemo. Have not seen Oncologist yet(3 weeks). Can not fully comprehend the 180 turn around yet. Feb debulking was aborted....now I have a whole new opportunity.....

Every three weeks...leaves me with weakness. Chemo was fatigue...this is slighly different.

Cisplatin was introduced because supposedly Avastin quit working. Blood work alerted us to 3 small new abnormalities.Cisplatin is "so strong" it is given in 3 cycles.

Avastin failed to help control growth....Cisplatin was started in February 2013..Very tough dose...Was barely functiong ...after 3rd one I asked for lower dose...much more tolerable...chronic disease at this point. Ca 125 has dropped dramatically...

The side effects from chemo are getting tougher as the chemo accumulates.....however my CA125 is at an all time low of 22 as of June 2012....

chemo is becoming as great a threat to life as the cancer is...

as the chemo accumulates over 2 years...the daily life is mostly about side effects

neuropathy has increased to uncomfortable level...now exertion causes panting because not enough oxygen...red/white cells are depleted. some neausous days too.

Onc referred me to Hospice....I have lost my cancer battle