judalou's Journey with Ovarian and Fallopian Tube Cancer

Patient: Ovarian and Fallopian Tube Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 77, Stage III

  1. 1
    • judalou
    • Experience with Ovarian and Fallopian ...
    about 5 years ago
    judalou's Avatar

    Diagnosed

    Oh No

    Primary physician didn't believe in 125 test. 2 1/2 years prior advised gynocologist of family history. Stated I felt something was changing. No pain or spotting. No conclusive test results. But I knew....And now it's here...Stage 4

    1 Comment
  2. 2
    • judalou
    • Experience with Ovarian and Fallopian ...
    about 5 years ago
    judalou's Avatar

    Debulking surgery

    Procedure or Surgery

    Surgeon looked into a calcified omentum cake plus cancer cells everywhere. Sewed me up...sent me home to more chemo.... CA125 # has dropped from 3500 to 100....What does this mean?

    Went as Expected: Strongly Disagree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  3. 3
    • judalou
    • Experience with Ovarian and Fallopian ...
    about 5 years ago
    judalou's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    3 cycles before surgery...because of urgency reflected in high CA125 Now more chemo is indicated...Chemo not so bad but the "neulasta shot is a killer for 5-7 days of agony...

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
  4. 4
    • judalou
    • Experience with Ovarian and Fallopian ...
    about 5 years ago
    judalou's Avatar

    Thinking problems

    Side Effects

    chemo brain or chemo fog is frustrating..some vision fuzziness....fatigue

    0 Comments
  5. 5
    • judalou
    • Experience with Ovarian and Fallopian ...
    over 4 years ago
    judalou's Avatar

    Decision Point

    Have now had 3 more cycles of chemo & gotten petscan in late May.....Surgery is now a possibility again or a maintence schedule of chemo...lower doses as needed to control tumor. Surgery will include removal of some large intestine to detach omentum cake. Different surgeons with more aggressive ideas. A leap of faith here. Will see my Oncologist tomorrow & hear her take on this new info.

    0 Comments
  6. 6
    • judalou
    • Experience with Ovarian and Fallopian ...
    over 4 years ago
    judalou's Avatar

    Debulking surgery

    Procedure or Surgery

    This second surgery on August 2nd went far better than I had reason to expect. Chemo had reduced tumors & surgeon was so pleased to be able to remove almost all. Two small spots remain & will be treated with followup chemo. Have not seen Oncologist yet(3 weeks). Can not fully comprehend the 180 turn around yet. Feb debulking was aborted....now I have a whole new opportunity.....

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
  7. 7
    • judalou
    • Experience with Ovarian and Fallopian ...
    over 4 years ago
    judalou's Avatar

    Avastin to block blood flow to cancer site...starve the cancer

    Drug or Chemo Therapy

    Every three weeks...leaves me with weakness. Chemo was fatigue...this is slighly different.

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  8. 8
    • judalou
    • Experience with Ovarian and Fallopian ...
    almost 4 years ago
    judalou's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Cisplatin was introduced because supposedly Avastin quit working. Blood work alerted us to 3 small new abnormalities.Cisplatin is "so strong" it is given in 3 cycles.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  9. 9
    • judalou
    • Experience with Ovarian and Fallopian ...
    almost 4 years ago
    judalou's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Avastin failed to help control growth....Cisplatin was started in February 2013..Very tough dose...Was barely functiong ...after 3rd one I asked for lower dose...much more tolerable...chronic disease at this point. Ca 125 has dropped dramatically...

    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  10. 10
    • judalou
    • Experience with Ovarian and Fallopian ...
    over 3 years ago
    judalou's Avatar

    Side Effects

    The side effects from chemo are getting tougher as the chemo accumulates.....however my CA125 is at an all time low of 22 as of June 2012....

    0 Comments
  11. 11
    • judalou
    • Experience with Ovarian and Fallopian ...
    over 3 years ago
    judalou's Avatar

    Celebration

    This person has yet to add any details about this experience.

    0 Comments
  12. 12
    • judalou
    • Experience with Ovarian and Fallopian ...
    over 3 years ago
    judalou's Avatar

    Side Effects

    chemo is becoming as great a threat to life as the cancer is...

    0 Comments
  13. 13
    • judalou
    • Experience with Ovarian and Fallopian ...
    over 3 years ago
    judalou's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    as the chemo accumulates over 2 years...the daily life is mostly about side effects

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  14. 14
    • judalou
    • Experience with Ovarian and Fallopian ...
    over 3 years ago
    judalou's Avatar

    Side Effects

    neuropathy has increased to uncomfortable level...now exertion causes panting because not enough oxygen...red/white cells are depleted. some neausous days too.

    0 Comments
  15. 15
    • judalou
    • Experience with Ovarian and Fallopian ...
    about 3 years ago
    judalou's Avatar

    Other

    Loss

    Onc referred me to Hospice....I have lost my cancer battle

    3 Comments