alznurse's Journey with Colorectal (Colon) Cancer

Caregiver: Colorectal (Colon) Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Male, Age: 65

  1. 1
    • alznurse
    • Experience with Colorectal (Colon) Ca...
    over 5 years ago
    alznurse's Avatar

    Diagnosed

    Oh No

    We had a very close friend who had lived with us for the past two years. He had medical issues but in august of 2011 he began to lose wt. and have stomach problems. My husband Jim was taking him back and forth to VA and hospital and taking care of him and he died on Jan. 7th 2012. My husband was having some stomach issues as well with constipation which he has never had in his life. I had made an appointment with his primary physician but couldn't get in until the next week. On Thurs. Jan 12th he got up again with vague stomach discomfort and lower abdominal pain and said he just couldn't wait until the next week so I took him to the ER at a nearby hospital. They did an ultrasound thinking gallbladder and a CT of abdomen. Dr. entered exam room and said "you have liver cancer" " but we dont think it started there so we want to put you in hospital and run tests to find out where primary site is...could have knocked us over with a feather. Next day they did MRI, bone scan, and Colonscopy.. found primary in colon with mets to liver, bone (left hip) and both lungs. Oncologist said inoperable at this point and ordered chemo and radiation (for hip) And the journey began.

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  2. 2
    • alznurse
    • Experience with Colorectal (Colon) Ca...
    over 5 years ago
    alznurse's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Jim had a port placed and was released from hospital on Jan. 16th with all kinds of new orders. At this point we were still not convinced that someone wasn't going to come through the door and say it was all a mistake.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • alznurse
    • Experience with Colorectal (Colon) Ca...
    over 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    On Jan. 25th Jim had his first chemotherapy treatment. We had an education class about chemo and were completely lost when it was over, with all the side effects possible and the adjuct meds they would give him for his blood and nausea, even with 30 years as a nurse I was overwelmed I can imagine what someone with no medical knowledge would be feeling.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    • alznurse
    • Experience with Colorectal (Colon) Ca...
    over 5 years ago
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    External radiation

    Radiation

    Jim had radiation every afternoon from Jan 31 through Feb. 3. Driving one hour each way for a 10min radiation treatment. No side effects noted of radiation. Went to oncologist on Wed. feb. 1st. WBC dropped from 15+ to 5. after chemo last week.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  5. 5
    • alznurse
    • Experience with Colorectal (Colon) Ca...
    over 5 years ago
    alznurse's Avatar

    Hospitalization

    Other Care

    Jim to hospital ER sunday 2/5 due to stomach pain and cramping. does not feel like his bowels are moving enough. He has a blockage. Dr. says will put on TPN and nothing by mouth for a few days and hope it will straighten itself out. On Mon. had unit of blood because of low H&H. Decidion made that they are going to have to do surgery and attempt to take tumor out of bowel. anesthesia consulted and says no, needs to go to bigger hospital in gainesville for surgery. continuing on TPN. Sent to shands at UF on Wednesday night after finding surgeon to accept and bed. Surgery planned for Friday Will attempt to put stent in bowel to keep open but if not successful will do surgery to try to remove tumor. Friday am surgeon in and says no surgery due to so much cancer in Liver would not survive. In afternoon off to have GI surgeon attempt stent. Thankfully was successful. The problem with big hospitals is every department (GI, Surgery, Oncology, Pulmonary, Cardiology, etc.) All have their own team and they all make their own diagnosis and plan and dont appear to communicate with each other. Anyway stent successfully placed Friday afternoon. He got clear liquids Friday night and whole breakfast and lunch Saturday and released to come home Saturday evening.

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