Prentiss' Journey with Inflammatory Breast Cancer

Survivor: Breast Cancer > Inflammatory Breast Cancer

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: about 9 years ago, Female, Age: 47, Stage IV, HER2 Positive: Yes, ER Positive: No, PR Positive: No

  1. 1
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 5 years ago
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    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  2. 2
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 5 years ago
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    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  3. 3
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 5 years ago
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    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  4. 4
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 5 years ago
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    Decision Point

    This person has yet to add any details about this experience.

    0 Comments
  5. 5
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 5 years ago
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    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 5 years ago
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    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  7. 7
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 5 years ago
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    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  8. 8
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 5 years ago
    Prentiss' Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  9. 9
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 5 years ago
    Prentiss' Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  10. 10
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 5 years ago
    Prentiss' Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  11. 11
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 5 years ago
    Prentiss' Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  12. 12
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 5 years ago
    Prentiss' Avatar

    Decision Point

    This person has yet to add any details about this experience.

    0 Comments
  13. 13
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 5 years ago
    Prentiss' Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  14. 14
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 1 year ago
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    Misdiagnosed

    Oh No

    At the birth of my 3rd son, in 2007, he was rushed to the pediatric ER just a few hours after he was born, blue in the face after throwing up blood- Exorcist style, so powerful that he sat upright in the bassinet. 3 weeks and many procedures into the hospital stay, I managed to order a forensic blood test and a breast pump online. This liberated us from the shackles of this "learning" hospital with an apology from the CEO of Our Lady of the Lake and a referral to a Breast Specialist. Once My sweet baby turned his cheek to Breast feeding I was able to return to the Breast Specialist for investigative testing. Surprised to learn that I could not do a mammogram after the required pregnancy test...baby 4 on the way in 5 years...(hmmmm, could this be the reason so many mothers perished at the turn of the century during childbirth?) I had to find a new OBGYN, because my water birthing champion OB was on her way to Kenya for medical missionary work...so I sought out the only MD OB left in town that would venture into the water with me...2 months later at our first appointment I recounted my story and confessed that I knew that I had breast cancer and needed a referral from her to see my already established Breast Specialist...she dismissed my fears and set a follow up appointment a month later. (Rinse and repeat for the next three months, bringing me to the one year anniversary and birthday of my 3rd born son...needless to say, I began to realize that I was experiencing "care" from an Ivy League educated OB who was ten years in practice running a baby mill. With a five day temperature of 105, 3 courses of antibiotics for "mastitis" and a left breast so big (triple D) and so hot and agonizingly painful, I returned for my next monthly exam only to be told that "Elvis had left the building" for a C-section...inconsolable, I was left at the appointment desk to reschedule and faced another 2 hr commute back to my tiny village...in hopes of containing the scene of this pitiful pregnant woman wailing with elephantitus of the left breast, a newly hired CNP took me aside for an examination, told me I had Inflammatory Breast Cancer and sent me immediately across the street for a sonogram. The Radiologist chased me down in the parking lot and ushered me to my Breast Specialist who sent my three babies to the waiting room as she performed several core and fine needle biopsies on a Friday afternoon. I was diagnosed the next Monday while my husband was in an important meeting with a perspective investor in a company he was starting up...Happy Valentines Day! Four years later I finally got to face the Baby Mill OB again, this time in front of a judge and jury...as the annual Susan G Komen BC race pinked up the street 5 stories below, the Ivy League Baby Mill Doctor was convicted of mal practice and her license to practice revoked with too many maternal and fetal mortalities in her wake. Her expert witness from NYC turned on her in the stand, looked me in the eye and tearfully pronounced me a medical miracle. Justice isn't swift, but I was given a free pink Race for the Cure Tshirt as I left the court house.

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  15. 15
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 1 year ago
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    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  16. 16
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 1 year ago
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    Chemotherapy

    Drug or Chemo Therapy

    The day after my Valentine dx, my sweet father provided for me and my husband, a swank trip to NOLA to celebrate our 5th anniversary and arranged a flight for us to our first meeting with Dr. Massimo Christofanilli, the foremost authority and founder of the only Inflammatory Breast Cancer clinic in the world, at that time it was known as The Morgan Welch IBC center at MDAnderson in Houston, TX.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  17. 17
    • Prentiss
    • Experience with Inflammatory Breast C...
    about 1 year ago
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    Realizing that my husband wasn't a husband at all

    Decision Point

    February 15th, 2008: 5th wedding anniversary My dear cousin, Sue Baby, sent an English Nanny from the Bass family to care for my three toddler boys...Karen Boone, Mary Poppins pales in comparison to your bright and loving nature! Hutch and I arrived to an inn in the French Quarter 24 hours after hearing that at 6 months pregnant I might have 2 weeks to live. I was so sick. I couldn't breathe. The air in the room...four windowless walls...shaken, choking on tears, I begged my husband to get us a room with a balcony so that I could have some fresh air...he was angry and disparaging but stopped me in the hallway as I was making my way to the front desk with my request. An hour later we unpacked in a room with access to a roof patio. With the French doors wide open, I fell asleep. Sometime later, he woke me to dress for our anniversary dinner reservation. As we began our walk to the Brennan restaurant known for its fresh bread, Hutch informed me that we would be dining with 7 other couples from his YEO group (Young Executive Officers- the exclusive membership extended to only a few founding CEOs under 40 years old with medium to large companies grossing over a few million dollars in revenue annually). Furthermore, he asked me to not mention my diagnosis and promised to leave whenever I asked. After the 3rd round of bread and becoming nauseous from smelling something delicious the chef was preparing, I excused myself and bid the club members à dieu. Hutch stayed behind, enjoyed the meal and followed the group to the Old Absinthe House for cigars and whiskey. The next morning my childhood friend, Michael Crowell, picked us up and flew us to Houston playing some JJ Cale my brother recorded for me...when it's good, it's really good. When it's bad, it's the blues that brings you through to the love.

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