teach45's Journey:

Patient: Rare Cancers

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 5 years ago, Male, Age: 72

  1. 1
    • teach45
    • Experience with Rare Cancers
    over 5 years ago
    teach45's Avatar

    Diagnosed

    Oh No

    I have just been diagnosed with primary myelofibrotosis

    0 Comments
  2. 2
    • teach45
    • Experience with Rare Cancers
    about 5 years ago
    teach45's Avatar

    Procedure or Surgery

    Not much can be done as far as a cure due to age (66) but I do not have any severe side effects yet as disease is thought to be in early stage, Will be monitored month by month to watch for more serious symptoms.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • teach45
    • Experience with Rare Cancers
    about 5 years ago
    teach45's Avatar

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  4. 4
    • teach45
    • Experience with Rare Cancers
    about 5 years ago
    teach45's Avatar

    Decision Point

    I can likely qualify for a JAK2 clinical trial but this trial will only effect "quality of life" symptoms and can have side effects that reduces CBC. CBC are in low normal ranges at this time and I do not have other major symtoms. Must decide if the trial is worth it.

    0 Comments