GJSmith's Journey with Primary Mediastinal B-Cell Lymphoma

Patient: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Diffuse Large B-Cell Lymphoma > Primary Mediastinal B-Cell Lymphoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 8 years ago, Male, Age: 56, Stage IV

  1. 1
    • GJSmith
    • Experience with Primary Mediastinal B-...
    almost 8 years ago
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    Misdiagnosed

    Oh No

    This person has yet to add any details about this experience.

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  2. 2
    • GJSmith
    • Experience with Primary Mediastinal B-...
    almost 8 years ago
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    Surgery

    Procedure or Surgery

    Small needle biopsy x 6 and tumour core biopsy

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • GJSmith
    • Experience with Primary Mediastinal B-...
    almost 8 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Side effects mostly as expected. No Nauesa dramas however, "random" effect aplenty. Fatigue & memory loss impactful.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • GJSmith
    • Experience with Primary Mediastinal B-...
    almost 8 years ago
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    Ibrtinib Antibody

    Clinical Trial

    In conjunction with RCHOP Chemo. Possible placebo. No additional side eccects. Singaporeian based triel. 2nd subject in Australia.

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  5. 5
    • GJSmith
    • Experience with Primary Mediastinal B-...
    almost 8 years ago
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    Chemo brain

    Side Effects

    Vaugness and loss of ability to "communicate". OCD traits needed to manage tasks. Makes for "difficult" understanding with friends & family

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