anna's Journey with Invasive (Infiltrating) Ductal Carcin...

Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: about 6 years ago, Female, Age: 53, Stage I

  1. 1
    • anna
    • Experience with Invasive (Infiltrating) D...
    about 6 years ago
    anna's Avatar

    Stress, Anxiety, Dr Office Staff you name it

    Oh No

    I was diagnosed with invasive ductal carcinoma on 8/9/11 I found the lump by doing self exam two weeks before my scheduled anual physical I was then sent for a biopsy My doctor called me on the phone and said Anna your test results came back you have cancer I am gonna make you an appt with a specialist. I was in shock did not know what to ask. I went home and cried and told my family even though had no clue of the grade or the stage. I tried to work the next day and found it very hard to concentrate on anything but the diagnosis. I was able to get some work done in the days that followed but with all of the appts it was difficult I told my boss of the diagnosis and also requested some time off. My boss has been great but getting paid has been an issue. I have not been to work since 9/1/11 . I did not see an oncologist until last Friday I did see a surgeon who told me that the cancer was invasive HER2 neu what ever that means and that I needed a lumpectomy and lympectomy. I also had to have a mri due to something they saw on my mamogram in the other breast that turned out to be benign thankfully. The Lumpectomy and lympectomy was done on 9/9/11 and I am recovering well but still do not know what my treatment plan will be. I spent 2 hours at the oncologist office on Friday just to find out that the lump was larger then they thought therefore the grade had been increased to a 3 and that the stage is 1 they need to do some test that takes 2 weeks to get the results the test is performed on the lump that they have had for 2 weeks. I also needed blood work that they would perform a full oncology work up on My anxiety is why have these not been done yet. Why do I not know what treatment options are. They have said hormone and radiation are definate and possibly 8-20 weeks of chemo. I am scared and dont know what to do.

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  2. 2
    • anna
    • Experience with Invasive (Infiltrating) D...
    about 6 years ago
    anna's Avatar

    Lumpectomy

    Procedure or Surgery

    the side effects were actually not as bad as I thought they would be today is 3 weeks and while I still have minor discomfort I am recovering well It does hurt to wear a bra for more then an hour I have tried like every bra I could afford and the only thing I can tolerate is undershirts The anxiety is what has gotten to me

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • anna
    • Experience with Invasive (Infiltrating) D...
    about 6 years ago
    anna's Avatar

    Sentinel lymph node biopsy

    Procedure or Surgery

    this was done the same day as my lumpectomy and lympectomy The only side effect was blue urine and the fact that I had to avoid my grandaughter for 48 hours as it makes you radioactive

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. 4
    • anna
    • Experience with Invasive (Infiltrating) D...
    about 6 years ago
    anna's Avatar

    Decision Point

    I feel that the people involved in my treatment are desensitized to the feelings of the women they treat I have had to constantly call for them to follow thru on paper work so that I can get paid while on leave I still have not gotten paid this is since 9/1/11 I still have no treatment plan I feel like some of the appts are senseless as they are telling me the same old XXX everytime nothing new I made them cancel any follow ups and call me to schedule once they know what they are going to do

    0 Comments
  5. 5
    • anna
    • Experience with Invasive (Infiltrating) D...
    about 6 years ago
    anna's Avatar

    Decision Point

    Finally know what the treatment recomendation will be--- 12 weeks of chemo, 6 weeks of radiation and 5 years of hormone treatments. Appt next Friday to discuss these options. I am very unsure of any of the them.

    1 Comment
  6. 6
    • anna
    • Experience with Invasive (Infiltrating) D...
    almost 6 years ago
    anna's Avatar

    Oh No

    This person has yet to add any details about this experience.

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  7. 7
    • anna
    • Experience with Invasive (Infiltrating) D...
    almost 6 years ago
    anna's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    received TC treatment on Sept 8th first one I have had a lot of body aches some mouth and nose sores went back to oncologist on the 13th very low white blood count still have my hair although I cut it before the chemo I have a friend dieing in the hospital from brain cancer and I need to see her worried about infections but going anyway

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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