hopeful1's Journey with Bladder Cancer

Family/Friend: Bladder Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 8 years ago, Male, Age: 67

  1. 1
    • hopeful1
    • Experience with Bladder Cancer
    about 5 years ago
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    Diagnosed

    Oh No

    This person has yet to add any details about this experience.

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  2. 2
    • hopeful1
    • Experience with Bladder Cancer
    about 5 years ago
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    Surgery

    Procedure or Surgery

    Several bladder procedures and ultimately doctors wanted to remove the entire bladder, but by then it was too late. Cancer has already spread to the lung, and about a year later, spread to the brain (found out 2 weeks ago, February 2012).

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • hopeful1
    • Experience with Bladder Cancer
    about 5 years ago
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    Anemia (low red blood cell counts)

    Side Effects

    Severe fatigue from the chemotherapy, hair thinned quite a bit although my dad didn't lose all of his hair. Severe heartburn, nausea, depression, and plain feeling very sick. Chemotherapy seems like a major inconveniece and makes him very sick.

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  4. 4
    • hopeful1
    • Experience with Bladder Cancer
    about 5 years ago
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    Cancer has spread/Metastasized

    Oh No

    As of two weeks ago another road block, the cancer has spread to my father's brain. He was having double vision, slurry slightly and having trouble walking. CT scan at ER revealed multiple tumors in his brain. His doctors at no point in time ever, ever ordered at CT scan of his brain. He had 6 rounds of chemo between June and December of 2011 and not once did the doctors ever check his head! WHY NOT!!!!! Chemo does NOT AFFECT the brain at all due to the blood/brain "barrier". I did not know that until the doctor at the hospital right after ER visit 2 weeks ago told me that. Why the heck didn't the keep a close watch on his brain????!! The bladder cancer had already spread to his lung, so why not check his brain! Why why why not!

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  5. 5
    • hopeful1
    • Experience with Bladder Cancer
    about 5 years ago
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    External radiation

    Radiation

    My dad had his 3 round of radiation therapy this morning. His forehead is now starting to burn and feel hot. He is very extremely fatigued and his breathing seems more labored. I am scared for him and worry every minute of each day. I live with my father and I am his caretaker at this moment. It breaks my heart to see him suffering.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  6. 6
    • hopeful1
    • Experience with Bladder Cancer
    about 5 years ago
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    Lost loved one

    Loss

    My father passed away a few weeks ago after 5 days in ICU. He was sent home on hospice and lasted 2 days at home before he passed away. He was surrounded by family, prayer, and lots of love.

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