dougbank's Journey with Non-Seminoma, Testicular Cancer

Survivor: Testicular Cancer > Non-Seminoma

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: over 24 years ago, Male, Age: 51, Stage I

  1. 1
    • dougbank
    • Experience with Non-Seminoma, Testicu...
    about 5 years ago
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    Removal of testicle

    Procedure or Surgery

    I had a left inguinal orchiectomy. This was a long time ago, so they actually used a general anesthetic and I spent the night in the hospital. I remember waking up in the middle of the night not being able to feel any of the skin around the left side of the scrotum. I later learned that some nerves are cut or stressed during surgery and this is not an uncommon side effect. Nevertheless, it was a surprise. It lasted about a year, but it did eventually go away. My recovery was pretty simple, and I think I only missed a couple of days of work. I did walk around in sweat pants for a couple of weeks and wasn't particularly productive, but I don't think it was too bad.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
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  2. 2
    • dougbank
    • Experience with Non-Seminoma, Testicu...
    about 5 years ago
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    Decision Point

    After the orchiectomy I had to decide what to do next. My urologist was convinced that I needed to do and RPLND with 2 cycles of chemo or I would die. I did enough research to figure out that he was very inexperienced and just wants a chance to do the surgery. My insurance would not let me leave the HMO network for treatment, so because I was trying to have a kid and because my urologist had no experience, I decided to go with surveillance. Of course, I got a second opinion that supported my conclusion. Not only did they agree with surveillance, but they revised the pathology report, eliminating one of the bad components mentioned in the original pathology.

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  3. 3
    • dougbank
    • Experience with Non-Seminoma, Testicu...
    about 5 years ago
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    Email Support Group

    Other Care

    I was diagnosed at the beginning of the internet. In fact, it was before the web really existed. I could not find anyone to talk with about my cancer because the diagnosis is so rare, and no one could really understand my treatment decision anxiety because testicular cancer is so unlike other cancers. Nevertheless, I managed to find two other guys on an email list - one from Ohio and the other from New Zealand - who were diagnosed with basically the same thing as me at basically the same time as me. We all did surveillance together and "talked" to each other via email. I found it to be very helpful, and I continue to try to help others with testicular cancer wherever I find them.

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  4. 4
    • dougbank
    • Experience with Non-Seminoma, Testicu...
    about 5 years ago
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    Testicular Cancer Resource Center

    Other Care

    About 4 years after my diagnosis I got involved with another testicular cancer patient and helped to create the Testicular Cancer Resource Center web site and the TC-NET email list. Both these entities help provide information and support to newly diagnosed testicular cancer patients. I'm happy to answer questions on this site, on my site, or on the email support list. TCRC - http://tcrc.acor.org TC-NET - http://tcrc.acor.org/tc-net.html

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