canncann28's Journey with Non-Hodgkin Lymphoma (NHL)

Patient: Non-Hodgkin Lymphoma (NHL)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 6 years ago, Female, Age: 29

  1. 1
    • canncann28
    • Experience with Non-Hodgkin Lymphom...
    over 5 years ago
    canncann28's Avatar

    Diagnosed

    Oh No

    I had weird lesions on my body for 2 years before I finally got a diagnosis. I never, ever thought it would be cancer. I was devastated.

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  2. 2
    • canncann28
    • Experience with Non-Hodgkin Lymphom...
    over 5 years ago
    canncann28's Avatar

    External radiation

    Radiation

    I started off with radiation treatment because I had a huge open wound/lesion on my arm that had nodules and was bleeding a lot. After 6 weeks of the treatment, my wound and nodules shrunk substantially. As of 9/27/11, the wound is still trying to heal and close up. I still have to keep it covered, but the difference is extreme (in a good way).

    Painless Experience: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • canncann28
    • Experience with Non-Hodgkin Lymphom...
    over 5 years ago
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    Cancer has spread/Metastasized

    Oh No

    The cancer spread into a lymph node underneath my armpit and was extremely painful. While waiting for the authorization for chemo, I got 103 fever and chills and was admitted to the hospital. I stayed there for a whole week and got my first chemo treatment while in the hospital. It was the most horrific experience of my life. When they installed my PICC line, they collapsed 4 of my veins before successfully putting it in. Prior to that, they had run out of veins to draw blood and give me anti-biotics through. Even now, my PICC line is bothering me because it was put in so hastily.

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  4. 4
    • canncann28
    • Experience with Non-Hodgkin Lymphom...
    over 5 years ago
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    Diarrhea

    Side Effects

    Since I have started chemo, the biggest side effect I have picked up is CHRONIC acid reflux and diarrhea. No matter what I do, eat, drink, etc...I have this terrible burning in my stomach and I have to run to the bathroom often. I have tried everything from omeprazole, maalox, pepcid ac, and immodium. The immodium seems to help, but if I take too much of it, I get backed up. No win situation.

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  5. 5
    • canncann28
    • Experience with Non-Hodgkin Lymphom...
    over 5 years ago
    canncann28's Avatar

    Decision Point

    I feel very lost at this point. I want to find people my age who are going through the same thing. My hair is falling out. I'm trying my best to keep up in school but it's difficulty. My focus is off. I don't know what I need to do in order to strengthen my mental state and not allow this to keep me from doing the things I want to do in life.

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