ShirinePont's Journey:

Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma > Triple-Negative Breast Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Female, Age: 42, Stage II, HER2 Positive: No, ER Positive: No, PR Positive: No

  1. 1
    almost 5 years ago
    ShirinePont's Avatar

    Diagnosed

    Oh No

    At an antenatal checkup for my beautiful baby boy a lump in my breast seemed suspicious. Test after test was done just to be 'on the safe side', but then, after a FNB (fine needle biopsy, where they poke your breast repeatedly with needles) the diagnosis came through - positive for malignant cells. Of course, as my husband was traveling out of country, in Iraq to be precise! And the next test I was supposed to do (bone scan with radioactive material I think) meant I couldn't be close to my baby for 24 hours -- how was that supposed to work when breastfeeding and with a traveling husband?? All in all, a lot of 'oh no' moments ...

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  2. 2
    almost 5 years ago
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    Axillary Lymph Node Dissection

    Procedure or Surgery

    This was part of a 5 hour operation which included a partial mastectomy and breast reconstruction. Luckily, the lymph nodes were clear. But I never realized how long it would take to recover physically from the op - 3 months later, I still don't have full range of movement of my arm.

    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  3. 3
    almost 5 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    I am incredibly happy to have the port! But it doesn't help that (I have small breasts) it sometimes looks as if there is a third nipple under my t-shirt! And I have to stop my 2.5 year old from bouncing around on me, which always makes me sad.

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  4. 4
    almost 5 years ago
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    Mastectomy

    Procedure or Surgery

    Recovery from this operation felt like having been in a bad car accident. I've never been in so much pain in my life before! My left arm, shoulder and rib cage (I had FLAP reconstruction done at the same time) constantly felt like someone was poking a red hot iron into them. For the first time in my life, I requested ever stronger pain killers (after giving birth naturally to two kids, so I have had previous encounters with pain). I remember being in the hospital bed and being unable to reach the food they had delivered on a tray to the bedside; my left side was just one giant bandaged sore, and my right side trapped by IV lines. I felt so helpless, and completely lost and alone in sea of pain. That's when what I was going through really hit me.

    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  5. 5
    almost 5 years ago
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    Breast Reconstruction (Flap)

    Procedure or Surgery

    It took a while to accept this new reality, and for several weeks I was quite angry about the irreversible change done to my body. In ways, it felt like grieving for my youth. Besides that I can feel one rib directly under my skin, which sometimes still freaks me out a bit, i.e. when I touch it or am touched -- and it can be uncomfortable to lie on. A strange side effect of this procedure is that every time I cough or sneeze, the muscle 'in my boob' jerks. Supposedly that will stop once the brain readjusts. I wonder if I can learn to jiggle my breast on command (or demand...:) ?

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  6. 6
    almost 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  7. 7
    almost 5 years ago
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    Side Effects

    Hair loss, nail decoloration, constipation, neausa, migrane headaches, insomnia... And I think, so far, I got lucky! Who knows what else will pop up. Just had chemo #4 and now I can add some bad swelling of hands and feet - barely got my rings off in time.

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