eccrine100's Journey with Skin Cancer - Non-Melanoma

Patient: Skin Cancer - Non-Melanoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 7 years ago, Male, Age: 67

  1. 1
    • eccrine100
    • Experience with Skin Cancer - Non-M...
    about 5 years ago
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    Diagnosed

    Oh No

    presents and was treated as wart on finger but after several years biopsy determined it was rare skin cancer- eccrine porocarcinoma.

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  2. 2
    • eccrine100
    • Experience with Skin Cancer - Non-M...
    about 5 years ago
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    Full lymph node dissection

    Procedure or Surgery

    right arm lymph nodes removed, this was good for almost a year

    Went as Expected: Strongly Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • eccrine100
    • Experience with Skin Cancer - Non-M...
    about 5 years ago
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    External radiation

    Radiation

    follow up to lymph node surgery, 6 weeks of radiation

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    • eccrine100
    • Experience with Skin Cancer - Non-M...
    about 5 years ago
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    Mohs surgery

    Procedure or Surgery

    very good, no recurrence for almost 5 years

    Went as Expected: Strongly Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  5. 5
    • eccrine100
    • Experience with Skin Cancer - Non-M...
    about 5 years ago
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    Bone strengthening drugs

    Drug or Chemo Therapy

    after a year metastasis to lung occurred, with a few ribs impacted. Zometa infusion for bones.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  6. 6
    • eccrine100
    • Experience with Skin Cancer - Non-M...
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    there was not a surgical option for lung metastasis so tried a few chemo solutions. Nexavar and Afinitor provided temporary positive results, currently on afnitor. These drugs are normally used for kidney/liver cancers. Since my skin cancer eccrine porocarcinoma is so rare no standard treatments are available. My concern at this point is exactly "what next". Looking for any trials or other drugs that might have proved useful.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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