slatebreak's Journey:

Patient: Colorectal (Colon) Cancer > Adenocarcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 8 years ago, Female, Age: 66, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know, Stage IIIB

  1. 1
    • slatebreak
    • Experience with Adenocarcinoma, Col...
    over 7 years ago
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    Your sick but it's not what you think...

    Oh No

    Thought I had food poisoning; told I had ischemic colitis and colon cancer.

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  2. 2
    • slatebreak
    • Experience with Adenocarcinoma, Col...
    over 7 years ago
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    To undergo watchful waiting with 3 month check-ups, and no surgery.

    Decision Point

    Agreed as all test results MRI, CT, EUS etc showed no evidence of disease.

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  3. 3
    • slatebreak
    • Experience with Adenocarcinoma, Col...
    over 7 years ago
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    I Got A Miracle

    Celebration

    Was told I didn't need to have surgery, chemo, or radiation. Was given a miracle.

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  4. 4
    • slatebreak
    • Experience with Adenocarcinoma, Col...
    over 7 years ago
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    Cancer is back/Recurred

    Oh No

    At 3 month check up (the very first one) was told there was a mass in tumor bed as well as a second mass in proximal colon. A mass on ovary was located. The miracle was taken away...it was gone.

    1 Comment
  5. 5
    • slatebreak
    • Experience with Adenocarcinoma, Col...
    over 7 years ago
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    Laparascopic colon surgery

    Procedure or Surgery

    I had a lower anterior resection combined with a bilateral oopherectomy. So they took out about 12 inches of sigmoid colon along with ovaries, fallopian tubes, etc. I also apparently had a lot of adhesions on the pelvic wall so that was removed also. 6 1/2 hours of surgery and 5 surgeons...On enhanced recovery program so I was up walking night of surgery and eating. Discharged second day after surgery. I've had bladder spasms, decreased urine flow along with pain but spasms have resolved for the most part.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    2 Comments
  6. 6
    • slatebreak
    • Experience with Adenocarcinoma, Col...
    over 7 years ago
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    Cancer has spread/Metastasized

    Oh No

    Been told all along that most likely there was no lymph node involvement. Did not expect at 3 month checkup and surgery to have lymph node infilitrated. Also learned cancer had invaded muscularis polaris.

    2 Comments
  7. 7
    • slatebreak
    • Experience with Adenocarcinoma, Col...
    over 7 years ago
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    CT scan

    Procedure or Surgery

    So I've been in 3 week limbo since surgery. Went from Stage 1 to Stage IIIa following surgery and am now waiting to see what showed up on scan. Meeting with oncologist on Thursday. I'm expecting to hear that I need chemo and don't have a clue as to the structure of treatments. Is it every 2 weeks, 1 week, etc. In many respects I feel like a sword is over my head, while I await my fate. And now I've begun wondering about the outcome. I went through the surgery, but it didn't go away. Will the same thing be true with chemo? And I'm starting to realize that this is probably what I will eventually die from, but from here on out it's a question of managing the disease. Is it true? Should I be looking at it this way? I was told they can conclusively say I have cancer, but cannot conclusively rule out that I don't have it. Is this the way the rest of the journey goes? Even when it looks like it's gone you can't feel that you are cancer free? Lots of questions at this point...

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    5 Comments
  8. 8
    • slatebreak
    • Experience with Adenocarcinoma, Col...
    over 7 years ago
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    Change in Staging

    Oh No

    Well it seems every time I meet with the Mayo docs, my status changes somewhat - and not in a good way. Following surgery we were under the impression my stage was IIIa. Yesterday I was informed that it is in fact stage III b. So it seems that regarding the statistical charts for 5 year survival, I went from 73% to 46%. I have to say though that I've come to believe that all these numbers are somewhat meaningless. It seems that things change so fast...So I'm going to ignore all that and just do what I've got to do.

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  9. 9
    • slatebreak
    • Experience with Adenocarcinoma, Col...
    over 7 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    So I've officially been scheduled to begin the cocktail on March 17. Before that they send me to chemo class and finances must pass! (Just joking though I do have to be cleared by fiscal before being allowed to proceed.) Port implementation has also been scheduled. I really want to get out of town for a bit so I can clear my head.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  10. 10
    • slatebreak
    • Experience with Adenocarcinoma, Col...
    over 7 years ago
    slatebreak's Avatar

    Change in Staging

    Oh No

    First oncology meeting - was under the impression following my surgery that I was stage III a. Oncologist told me I am Stage III b. There are nodules on my lungs that are indeterminate but assumed benign. The stats re: 5 year survival stats changed significantly now...but I'm not going to focus on that. I'm determined to focus on having decades with loved ones as I continue this dance with cancer....

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  11. 11
    • slatebreak
    • Experience with Adenocarcinoma, Col...
    over 7 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    Port installed yesterday. Feeling like I'm on an express train headed to...chemo! Things have happened so fast and changed so often...On a lighter note, when I awoke from surgery I was covered with 2 hearts as bandages! Right now it's very itchy and tight feeling. Lying down is difficult...

    Went as Expected: Strongly Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    3 Comments
  12. 12
    • slatebreak
    • Experience with Adenocarcinoma, Col...
    over 7 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    C Day blew in like a storm as it arrived decorated in the guise of St. Patrick's Day. While in past years the drink of choice was a Guiness or a strong martini, this year's lubrication came in the form of FOLFOX. In many ways I am just glad to get on with it, so that I can start looking at the date that marks the end of my dancing with chemo. And on the other, anxieties about scary cancer monsters and adverse reactions to chemo were spinning around my head this week as I approached the inevitable countdown. No private rooms or plush leather couches for visitors...rather a stiff reclining chair for the patient and a suitably stiff visitor chair to make sure your support team does what they agreed to do...support the patient! The cocktail made me drowsy, the nursing staff made me hopeful, and the long infushion went more easily than expected. Now at home taking more pills, tethered to a pump, and intending to get out and exercise as suggested by Zubsha and others. Staying hydrated..interestingly I was informed that not only can't I touch cold things, but I can drink them either. Apparenty they can cause bronchial spasms. So I'm adding to the what would you do differently list, if you enjoy ice cream or frozen yogurt, treat yourself before you begin chemo. You just don't know when you'll be able to have some again!

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    2 Comments
  13. 13
    • slatebreak
    • Experience with Adenocarcinoma, Col...
    over 7 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Second round of Folfox has obliterated me. I've had nonstop diarrhea, vomiting, abdominal pain, for the past 6 days. If this is the norm, I cannot do this. My hands have been like paralyzed claws and I have been experiencing dystonia. My gut has always been hypersensitive. What other options do I have?

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  14. 14
    • slatebreak
    • Experience with Adenocarcinoma, Col...
    over 3 years ago
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    Clear Scans and Bloodwork - NED

    Celebration

    I am now 3.5 years out from finishing chemo. This has been a tough journey. I had a severe reaction to the Folfox and had to take it one treatment at a time. It was the hardest thing I've ever done. And though I am NED I know that I will need to be vigilant. I've seen how quickly things can go off the rails. I now suffer from severe side effects from the chemo, the worst of which is joint pain and arthritis. I've had to have my hip replaced and multiple knee surgeries. The other hip and both knees will require replacement. The pain is horrible as is the limited mobility. I have to use a cane and can't stand for long. But I am still here and I am experiencing every single thing I can. I find survivorship lacking in resources but I am so grateful and blessed to be here.

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