MsGebby's Journey with Papillary Carcinoma, Breast Cancer

Survivor: Breast Cancer > Papillary Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 6 years ago, Female

  1. 1
    • MsGebby
    • Experience with Papillary Carcinoma, B...
    over 5 years ago
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    Diagnosed

    Oh No

    This person has yet to add any details about this experience.

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  2. 2
    • MsGebby
    • Experience with Papillary Carcinoma, B...
    over 5 years ago
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    Lumpectomy

    Procedure or Surgery

    first surgery was nerve racking as I did not know what to expect. had a second surgery to get clean margins 2 months later.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • MsGebby
    • Experience with Papillary Carcinoma, B...
    over 5 years ago
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    External radiation

    Radiation

    Radiation was hard because of having to go everyday. I had 36 treatments and did get 2nd and 3rd degree burns. The hardest part was having to walk through doors with the words "Cancer Treatment Center) above them everyday. Having that reminder was mentally draining.

    Painless Experience: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • MsGebby
    • Experience with Papillary Carcinoma, B...
    over 5 years ago
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    Fatigue (tiredness)

    Side Effects

    Fatigued from radiation. Tired ALL the time.

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  5. 5
    • MsGebby
    • Experience with Papillary Carcinoma, B...
    over 5 years ago
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    Finished treatment

    Celebration

    March 1, 2012 was the last of the radiation treatments. What a day!

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  6. 6
    • MsGebby
    • Experience with Papillary Carcinoma, B...
    over 5 years ago
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    Decision Point

    I was diagnosed in August of 2011 with Stage IIa, 3cm tumor, no lymph involvement, IDC, papillary/cribiform breast cancer, grade 2, ER/PR+, Her2 negative. Had my first surgery Sept 19, 2011. The path report showed I am highly hormone positive (98% for both) and the margins were not clean. So I was set up for a full body CT scan in October. Frigthening news came back. My lungs were dotted with many nodules. 2 of them are 6mm x 4mm. My MO didn't seem concerned but I was. So I went to a thoracic surgeon and he told me that the nodules are semi solid and that is not good. Most semi solid nodules are cancer. Was this mets or another cancer? The thoracic surgeon calls my MO and she tells him no matter which cancer this is, she will just treat it with Arimidex. OK....I have my second surgery to get clear margins in November and all goes as planned. In December, I meet with the RO and tell him of my concern of the nodules in my lungs. He orders a PET scan. The report shows "indeterminate" but that cancer cannot be ruled out. It shows a host of other "things" but my doc assures me that there really isn't any concern with them. I finally start radiation treatments in January. It's been a roller coaster ride. The burns from rads are diminished (I finished March 1st 2012) and I am feeling good . Not having to think about cancer everyday does make life feel normal again. I started Arimidex 2 weeks ago and now have to wonder WHY. Back in September, my MO wanted to start chemo the day I first saw her. I really didn't want to go that route so I asked about the Oncotype DX test. She orders it, and it says my chances of recurrence are 4%. Having to take Arimidex for 5 years seems a bit extreme. The side effects have already started and I am going mad! I ache, sweat and am having depressive bouts. 2 weeks into it! I stopped it 2 days ago and already I feel better. I've read blogs from women who have had these similar aggravations and most just plain stop this stuff. My only concern are those nodules in my lungs. If they are cancer, this stuff will shrink them and kill them. I read from these blogs too that taking this drug at bedtime seems to ward off a lot of the side effects. I will try that until my next MO appointment. That's in April. I will have blood work and the PET/CT scan will be ordered. This road has been anything but easy. I am just grateful to be telling this story. If not for having a positive attitude AND tons of FAITH, I don't think I would be writing this today. I have cancer. Cancer does not have me.

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