delia323's Journey with Synovial Sarcoma, Adult Soft Tissue C...
Patient: Sarcoma - Adult Soft Tissue Cancer > Synovial Sarcoma
Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 9 years ago, Female, Age: 46
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Diagnosed
Oh No
Diagnosed as having a pinched nerve.
Diagnosed
Oh No
Re-diagnosed as having Thorasic Outlet Syndrome. Sent to surgeon to have first rib removed to correct problem. Surgeon instead had ultra sound and biopsi done. Advised I had no Thorasic Outlet Syndrome but instead had a bengin tumor. Advised a simple surgery needed.
Surgery
Procedure or Surgery
i was told surgery would be a simple, fast, and i would come out 100% back to normal in a few days. Instead pain increased and lost use of my thumb and index finger. It's been a few weeks and still no improvement.
Diagnosed
Oh No
i felt confused, went into operation thinking it was a benign tumor, came out of anesteshia finding out i had cancer.
Fatigue (tiredness)
Side Effects
After operation was sent home on new pain meds, previous pain was controlled by Ibuprophen. New meds causing constipation, nausea, vomiting, dizziness, and fatigue. Ibuprophen no longer works on new level of pain, so I am stuck with the side effects.
advised of possible out come
Oh No
I was advised that I might loss my arm above the elbow.... Wondering how this happen, I was first diagnosed as having a pinched nerve, now I might loss half an arm?