delia323's Journey with Synovial Sarcoma, Adult Soft Tissue C...

Patient: Sarcoma - Adult Soft Tissue Cancer > Synovial Sarcoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 42

  1. 1
    • delia323
    • Experience with Synovial Sarcoma, Adu...
    over 5 years ago
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    Diagnosed

    Oh No

    Diagnosed as having a pinched nerve.

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  2. 2
    • delia323
    • Experience with Synovial Sarcoma, Adu...
    over 5 years ago
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    Diagnosed

    Oh No

    Re-diagnosed as having Thorasic Outlet Syndrome. Sent to surgeon to have first rib removed to correct problem. Surgeon instead had ultra sound and biopsi done. Advised I had no Thorasic Outlet Syndrome but instead had a bengin tumor. Advised a simple surgery needed.

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  3. 3
    • delia323
    • Experience with Synovial Sarcoma, Adu...
    over 5 years ago
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    Surgery

    Procedure or Surgery

    i was told surgery would be a simple, fast, and i would come out 100% back to normal in a few days. Instead pain increased and lost use of my thumb and index finger. It's been a few weeks and still no improvement.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • delia323
    • Experience with Synovial Sarcoma, Adu...
    over 5 years ago
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    Diagnosed

    Oh No

    i felt confused, went into operation thinking it was a benign tumor, came out of anesteshia finding out i had cancer.

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  5. 5
    • delia323
    • Experience with Synovial Sarcoma, Adu...
    over 5 years ago
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    Fatigue (tiredness)

    Side Effects

    After operation was sent home on new pain meds, previous pain was controlled by Ibuprophen. New meds causing constipation, nausea, vomiting, dizziness, and fatigue. Ibuprophen no longer works on new level of pain, so I am stuck with the side effects.

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  6. 6
    • delia323
    • Experience with Synovial Sarcoma, Adu...
    over 5 years ago
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    advised of possible out come

    Oh No

    I was advised that I might loss my arm above the elbow.... Wondering how this happen, I was first diagnosed as having a pinched nerve, now I might loss half an arm?

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