spdsgrl's Journey with Colorectal (Colon) Cancer

Patient: Colorectal (Colon) Cancer

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 8 years ago, Female, Age: 53, KRAS mutation positive: No, BRAF mutation positive: Don't Know, Stage IV

  1. 1
    • spdsgrl
    • Experience with Colorectal (Colon) Cancer
    over 6 years ago
    spdsgrl's Avatar

    Cancer is back/Recurred

    Oh No

    Nodules in the lungs and mass on adrenal. Needle biopsy on lungs scheduled on 18th and Folfiri chemotherapy set for 25th. I think waiting for biopsy may be worse then actual procedure (at least I hope ;-))!

    2 Comments
  2. 2
    • spdsgrl
    • Experience with Colorectal (Colon) Cancer
    over 6 years ago
    spdsgrl's Avatar

    needle biopsy of lung

    Procedure or Surgery

    Got a little sick after procedure, but my own fault because I was so thirsty. I chugged to much water and on to fast. Procedure itself, just a bit uncomfortable. Not painful. Headache today, but still probably from meds and sleep deprivation before procedure.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
  3. 3
    • spdsgrl
    • Experience with Colorectal (Colon) Cancer
    over 6 years ago
    spdsgrl's Avatar

    Drug or Chemo Therapy

    I started Folfiri and Palumumab today and my sink is full of hair already. Probably the dye job ;-). Anyone else start to lose it this fast? To be fair I lost all of it quickly on FolFox, so was ready for this). So far, so good. No reactions to anything YET. Plus, I survived day one of my dog at training and my son on his retreat. All in all...could have been worse. Today...started extending my life.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    5 Comments
  4. 4
    • spdsgrl
    • Experience with Colorectal (Colon) Cancer
    about 6 years ago
    spdsgrl's Avatar

    Drug or Chemo Therapy

    Cuts on hands and feet from 5fu and Vectibix rash make it tough to do fine motor skills like open pill bottles or tie blankets and cracks on feet make walking far difficult, but I believe it is ALL worth it. Seems to be working. I've had 6 Folfiri + vextibix tx and nodes stable or might be a tiny bit smaller. I did get blood infection under rash so had to miss one tx have 5 day hospital stay and come home on IV antibiotics, but not intolerable. We made and gave out 20 chemo blankets while in hospital for other patients, so trip worth it. We just want to pay it forward. If anyone needs a snugly chemo blanket for those cold infusion rooms, get my info from Greg. We do have a website www.kiskerhadleyfoundation.org and a FB page, but they need some updating a fad between school ending, hospitals, and chemo brain, I can't remember how to update the website. FB page a LITTE more current. :-)

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    4 Comments
  5. 5
    • spdsgrl
    • Experience with Colorectal (Colon) Cancer
    almost 5 years ago
    spdsgrl's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I am currently taking Stivarga and Herceptin. This cocktail was designed after genetic testing on the tumor. The Stivarga is pill form daily for 21 days and then one week off. I have been on it about 8 months now. So far I have had minimal side effects. Everything is manageable so far. I know it may get worse as I stay on it, but for now it seems to be working and tolerable.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  6. 6
    • spdsgrl
    • Experience with Colorectal (Colon) Cancer
    almost 5 years ago
    spdsgrl's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had Herceptin added to my treatment plan about 5 months ago because of the genetic makeup of my tumor. So far very manageable. Mostly stomach/ bowel issues. I have a test to make sure my heart isn't being damaged coming up, so fingers crossed so that I can stay on it.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment